Time for Palliative care?

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Dad has been in hospital for nearly 4 months. Multiple procures, tests, scan, 2 aspiration pneumonia, 3 ng tube, 1 jtube and now a rigg. Esophagus cancer, inoperable, incurable, very large mass. He now has a partially collapsed lung and pneumonia again - dr says they only have 1 antibiotic left to try and he has been on previous antibiotics for long periods. Dr said today Dad has weeks left. He was meant to go to valindre and start chemo, but is now too weak to do so, starting could risk his death sooner.

Does anyone have a similar situation? Experience of pallative care and what to expect?? 

Thank you

  • Hi Moon

    I have just popped a response to your other post. 

    I am sorry that Dad is so unwell at the moment. Please do give the Support Line a call if it would help to talk things through with one of the nurses. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hello Moon3

    Im so sorry you're going through this with your dad & I send you hope & strength at this very difficult time.

    My dad lived only 2 months after his advanced oesophageal diagnosis. During this time he was never well enough for the treatment plan they had for him. His stent failed, twice, & they wouldn't agree to any kind of PEG or feeding tube for him. He was admitted to hospital two weeks before he passed away with a blood clot & fluid on his lung, & acites. They stabilised him somewhat & got him a bed at the hospice where his palliative care was provided.

    My understanding of palliative care is that it can be supported through the hospital, hospice or home. It can look different for everyone, depending on patient need. Hospice care can also be a temporary stop gap as part of palliative care to help patients & their families get back on their feet a bit depending on where things are at.

    You might find it helpful to talk to the palliative nurses who will be able to tell you about what care & support they could offer your dad, & the family too.

    in dads case this was making him comfortable, keeping him hydrated for a while & continuing to encourage food. He had a physio, complementary therapy, & there were also doctors checking on his condition each day. The nursing team administered medication as needed. 

    Had he been at home he would have been under the palliative nursing team coming into the home to support him.

    I hope your dad can get everything he needs Moon3 Heart️ as you move through this challenging time together xx

  • Hello Moon 3 and others. I am new here. I am grieving the loss of my husband who died in early July in a hospice. Will I get an email when someone has replied?