one year on ....

FormerMember over 5 years ago

4 replies
51 subscribers
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Yesterday was my last day of Post Op ECX , and exactly 1 year since this journey began....

here it is....step by step.

endoscopy 18/5/2019.......biopsies takes from oesophagus....told 99.9% certain cancer .....await next communication and steps.

CT Scan 23/5/2019.......

follow up 29/5/2019 ......Confirmed CO T3,N1, M0 case transferred to Oxford.

MDT meeting 3/6/2019.....positive feedback from MDT...pathway considered "curative" with Surgery

Pet Scan 12/6/2019........... positive result from PET, Cancer has not spread anywhere else for now..

pre op Laparoscopy checks 14/6/19 - all good

Laparoscopy 25/6/2019.... biopsy from liver, all clear.

pre op physiotherapy review 8/7/2019.

Myocardial Perfusion Test 11/7/2019..... All Good

oncology meeting 19/7/2019. - will start 3 cycles (21 day per cycle) of ECX.

bloods and urine tests 23/7/2019.

pre chemo meeting 2/8/2019

ECX chemo cycle starts 5/8/2019, hand and foot problems, BP problems , got through it

ECX chemo ended 4/10/2019

pre op assessment 10/10/2019

CPET 10/10/2019

Pre op Physio review. 15/10/2019.

Post chemo Pet Scan 17/10/2019

Pre Op physio sessions starting 18/10/19 weekly until surgery..

surgery planned for 13th Nov - cancelled.

Surgery Now 20th Nov. - minimally invasive oesophagectomy , 10 hours.

post op discharge 2/12/2019.

Surgical clinic review 09/12/2019 Best Possible surgical outcome- all margins clear and 32 lymph nodes removed clear also.

oncology review 3/1/2020

gastroscopy with dilation 6/2/2020. 20 mm dilation of the pyloric sphincter, also treated for oesophageal candidiasis.

Post Op ECX begins 2/3/2020

chemo stopped due to Klebsiella infection - Antibiotics 14/4/2020

Chemo restarted - 27/04/20

last ECX tablets - 18/5/2020

FormerMember over 5 years ago

It's a long journey but you're certainly out the other side and doing well. Keep up the good fight and all the very best. Jayne

crystalclear over 5 years ago in reply to FormerMember

Well done. You’ve come a long way and I hope all those steps taken become big strides as time goes on. Stay focussed and positive.

Crystal x

Silverfox65 over 5 years ago

what a journey. what a strong man #respect

Helen1624 over 5 years ago

Morning, your dates and experiences match my husbands but his was 4 years earlier starting 17/6/2015 unfortunately he didn’t have such good results and it was already in his lymph nodes. You are now ready to enjoy yourself we had our first Family holiday after diagnosis in August 2016 and it was amazing Enjoy each day from now on, keep up the fight best wishes Helen xxx

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