So, 3 months have past since my discharge with the expected slow but progressive improvement with a few rocks thrown in to remind me that this is an ever evolving recovery. Main issues have been right lung recovery , treated with steriod inhaler and a pyloric sphinter dilation via endoscopic ballon , will probably require 2-3 more of these. The endoscopy also found oesophageal candidiasis, this treated with 21 days of fluconazole an anti fungal drug.
I was given option to have post op ECX and decided to go ahead as a belt and braces approach but was delayed due to issues. However as things have improved significantly i now start post op ECX on monday
journey to date :-)
endoscopy 18/5/2019.......biopsies takes from oesophagus....told 99.9% certain cancer .....await next communication and steps.
CT Scan 23/5/2019.......
follow up 29/5/2019 ......Confirmed CO T3,N1, M0 case transferred to Oxford.
MDT meeting 3/6/2019.....positive feedback from MDT...pathway considered "curative"
Pet Scan 12/6/2019........... positive result from PET, Cancer has not spread anywhere else for now..
pre op Laparoscopy checks 14/6/19 - all good
Laparoscopy 25/6/2019....... all good
pre op physiotherapy review 8/7/2019.
Myocardial Perfusion Test 11/7/2019..... All Good
oncology meeting 19/7/2019. - will start 3 cycles (21 day per cycle) of ECX.
bloods and urine tests 23/7/2019.
pre chemo meeting 2/8/2019
ECX chemo cycle starts 5/8/2019
ECX chemo ended 4/10/2019
pre op assesment & CPET 10/10/2019
Pre op Physio review. 15/10/2019.
Post chemo Pet Scan 17/10/2019 - tumor shrinkage SUV 9 < 4 and no spread.
Pre Op physio sessions starting 18/10/19 weekly until surgery..
surgery planned for 13th Nov - cancelled.
Surgery Now 20th Nov. - minimally invasive oesophagectomy , 10 hours.
post op discharge 2/12/2019.
Surgical clinic review 09/12/2019 Best Possible surgical outcome- all margins clear and 32 lymph nodes removed clear also. pathology T3 L1 V0 N0 M0 R0
oncology review 3/1/2020
gastroscopy with dilation 6/2/2020. 20 mm dilation of the pyloric sphincter, also treated for oesophageal candidiasis.
oncology review 14th feb.- agreed to start post op ECX 2/3/2020
R.
