My partner was struggling for 3 months eating and not being able to burp. His doctor prescribed omeprazole and he continued to get worse. He stopped work and told them he could not go back until he felt better. He couldn’t get out of bed, walking to the toilet was a chore. After blood tests he was called during the night by NHS 24 and told he needed an immediate blood transfusion. His haemoglobin was at 5. Two bags of blood and a bag of iron, CT scan and endoscope happened in the following days. We were told on Friday that he has Oesophageal cancer, a tumour that is 9cm long.
Apologies for the length of the story, a few questions...
1. What are folks experience on a time frame from tests to getting a meeting with specialists?
2. Has anyone here know of anyone with a tumour that size and what was the stage?
The waiting is awful, he is in pain and now home with Oramorph and paracetamol.
My hubby was diagnosed in June 2015 with oesophagael cancer, diagnosis was made from an endoscopy. He then had a CT scan a few days later, followed by an appointment with the gastric surgeon and the CNS. At this appointment we were told that as long as all the following tests came back ok then he would commence pre op chemo/op/possible post op chemo. The following tests were PET scan, laparoscopy, colonoscopy (not usually done but found something on PET scan) then a EUS (endoscopy with ultra sound) after all these we found it hadn’t spread and he was seen by oncologist who arranged the start of chemo all that took just over 6 weeks. Those weeks were a constant stream of appointments and procedures. He then had his 3 chemos followed by the Big op in November 2017 after his surgery we weren’t expecting any more chemo but they said they just wanted to make sure nothing had slipped through the net and it was just a precaution as he was still relatively young (50). So he had 3 more chemo. You are right the waiting is the hardest between every appointment the waiting to see if you can go on to the next stage is soul destroying but it needs to be done, I constantly pestered our CNS to rush through appointments but these things take as long as they will take but there are time scales they have to stick to. My hubby was T2N3M0. Any more questions please ask we went through it all and if I can offer any advice please ask. Love Helen xx
Thanks Helen.
mark has had a CT and an endoscope with biopsy’s. I keep hearing folk talking about PET scans and laparoscopy but we haven’t been told that he will get these, is that normal? When he was released from hospital they just said the biopsy and CT would be discussed at the MDT meeting then we would be contacted. Does this mean he still needs tests do you think? Or will they have the right information?
Sorry for hitting you will all these questions, I hope your hubby is doing well.
Rhona x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007