Hello, my journey so far, diagnosed 2023, Flot - OP Feb 2024 - Flot.
Oct 2024 - Healing went to well and a twist/hernia happened, I was given a CT scan tis picked up a reoccurrence, L-adrenal gland removed as it was so tiny no Meds were given just 3 monthly scans.
Nov 2025 2nd reoccurrence, picked up by the scan. Lymph nodes rear aorta region. 6 rounds of chemo and immunotherapy, I finished the last round on the 1st June and continue on with immunotherapy for 2yrs providing all stays well. Last 2 scans showed that the node had shrunk from 1.5 to 0.5.
PI am wondering if anyone has experienced complete numb feet and fingers, I am not in pain. One of the chemo was our lovely friend Oxy.
The numbness started after the 2nd round but has got worse since I have stopped? Am I being to impatient?
Also I have developed severe dry mouth over the last 6wks, spray and pastel do little, saucy 
food only.
Hi JenJen
I am sorry that you have not yet had a response to your post but sometimes it can just take a little longer for someone in similar circumstances to see it and respond.
I am sorry to hear that you are having some side effects from your treatment. My own cancer was endometrial so I do not have experience of the severe dry mouth but maybe this is something you could discuss with your CNS/consultant.
I did have chemo and the type I had was related to oxyplatin and it has left me with neuropathy. Mine started from the first cycle and led to reductions in dosages. I was told it was quite common. Mine also started with finger tips and toes. Mine also initially progressed when chemo ended but then pretty much stabilised. It did not go away completely and I have been prescribed medication to help with the pain. The best thing that helped me was to arrange a physiotherapy assessment and I was given some exercises that did help.
My neuropathy symptoms were initially tingling and a pins and needles sensation and this progressed to numbness, pain and altered sensations. However not everyone who gets neuropathy will be the same.
I did not have immunotherapy but I did find with my own chemo that it took 2/3 months post chemo to start to feel better.
I wish you well for your immunotherapy.
Jane
