Hi All
Diagnosed in March this year with Barretts Oesophagus with adenocarcinoma present, I was 57 in April, I had a minimally invasive robotic assisted oesophagectomy 20th May, in hospital 8 days, no spread to lymph nodes and told no other treatments/scans needed. Consider myself very lucky, eating and sleeping are now my biggest issues.
I have to eat tiny pieces depending on softness or how it breaks down but generally around half a teaspoon at a time and if I don’t pay attention and take too big a mouthful or don’t fully chew then it feels like it's stuck and I have to regurgitate. I’m guessing this is pretty common, can anyone tell me how long this is likely to last or will it never get better? I lost 10kgs 2 weeks post op. and now I’ve lost another 5kgs probably due to massively reduced diet and along with this goes the tiredness and lack of energy, only bonus is my BMI is now in the healthy range!
To avoid reflux advised to sleep at an angle so I bought a wedge pillow, trouble is I got chronic shoulder pain particularly in the mornings and also throbbing in my biceps is this common? I’ve stopped using the wedge, I used to sleep on my front so this is a big change, I can sleep on my side now but I’m still getting the pains, this is having a big impact, I struggle to lift my arms above my head in the mornings
I have my first clinic this Friday to see how I’m getting on but anybody's advice or experience would be appreciated
Many thanks
