Newly diagnosed - gastro oesophageal tumour

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Hello all, I joined following a malignant looking gastro oesophageal junction tumour on endoscopy 2 weeks ago, I'm a retired nurse practitioner and I'm so glad I joined as I've learnt so much and the positivity and support is clear to see.

I knew it was going to be malignant but the t4n2m0 today following an MDT has floored me. Pet scan and surgery to follow they've said, I'm very rural so everything will be at least 1.5 hrs away if not more.

I don't drink or smoke but I'm overweight and dealt with far too much trauma and stress in my life (I'm 55) so much so I've been in autistic/ADHD burnout for 2 yrs (diagnosed at 52).

I'm so glad I've read about successful T4 outcomes on here otherwise I would have thought it was game over. I'm a fighter I've got three children and almost 7 grandchildren and 2 dogs who need me xxx

  • Hi Donna

    Welcome to the Online Community.

    I am sorry to hear of your diagnosis of a gastro-oesophageal cancer. My own cancer was different to yours but by replying hopefully by me responding it will bump your post. Hopefully someone with a similar diagnosis will see it and offer some more specific support. 

    I am sorry that you diagnosis was not quite what you were expecting and I hope that your pet scan can be done quickly. I know for myself once I had all the testing done and was given a treatment plan, and knew what would happen and when it did start to feel a bit easier. I could then focus on what I was doing to deal with my cancer rather than the actual diagnosis. 

    Traveling to appointments when they are not close by can be an added worry but I know for me, once I got into the routines I did manage. Be prepared though for the travelling to be quite tiring. 

    Am glad that you have been able to find out more from the forum and that there have been some positive stories that bring hope. 

    I wish you well for your treatment but in the meantime if there is anything you need, please do ask. We also have the Macmillan Support Line available from 8am-8pm everyday- if you feel like talking things through would help.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm