Hey all, my dad’s been diagnosed with oesophagus cancer, a 4cm tumour. we’re unsure of the stage as he’s never been told when he had all the scans they said it hasn’t spread anywhere and chemo then surgery then more chemo would be used with a curative intent. He’s just had 4 rounds of chemo and been for a CT scan and he’s just got of the phone and the lady said the tumour has grown and it looks as though something is wrapped around it. It is now a big IF if St Thomas’ will operate. We’re totally lost and confused as his swallowing has massively improved and unsure of what will happen next. Has anyone been in a similar situation, or have dealt with St Thomas’ in a similar situation. He’s 56 and otherwise fit and healthy. Thanks in advance. Xx
Hi Applesandpears
i haven’t come across something being wrapped around it, you could always ring the GI nurses and ask them to explain it more for you and ask what it means going Forward now!
This group will help you through the journey your Dad is now on. Take care Steph x
I agree with Steph. You need a better explanation of the situation and a GI nurse should be able to help with this. We have found them very helpful. If they can't answer the question themselves they find out and get back to you. Things are hard enough without any confusion as to what's going on, so please get in touch with them - that's what they're there for.
Good luck to you and your dad. xx
Hello again. I was wondering how your dad was getting on. Have things become any clearer at all since you first posted? x
Thanks so much for all your support and checking in. No, was told to wait until St Thomas’ have their meeting, which is today. As I’m sure you can agree the waiting is the worst part. Should finally have some answers today either way. I’ll update when we know. Praying they agree to operate. Have a lovely day. Thanks again.
Thank you for your help. We’ve had confirmation that the tumour didn’t have something wrapped around it and it was inflammation. we were given the wrong information. He is having the surgery on June 1st. Very nervous but happy he’s having the surgery. Any advice on how best to get him through? Thank you all
That sounds good news for you all. Lots of us on this site have had the surgery so ask away if you have any questions. Hope all goes well for your dad.
So pleased to hear this, but it's shocking that you were given incorrect information in the first place that caused so much concern - as if you didn't have enough to worry about already.
My husband had his operation on 7th May and is currently still in hospital, hoping to be discharged any day soon. He's quite a bit older than your dad (69) and wasn't particularly fit when he was diagnosed, but did work on this prior to his treatment. He's coped with the surgery better than I expected, although some days he's in better spirits than others. I think you just have to 'be there' for him and take it one day at a time.
Thank you. Yes it definitely caused us added, unnecessary stress. Glad to hear your husbands on the mend. Hopefully you’ll have him home in no time. Good luck xx
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