afternoon guys, so just suffering from really uncomfortable pain in the side they went in (left, due to right masectomy), top of my left shoulder and down the left arm, i understand the chest aches and pains is what it is, but this is driving me mad, cant get comfortable, limited mobility, pain meds not touching, on immunotherapy and only had one 2 weeks ago so not sure if all linked.
also upset stomach, trying small amounts, different things, still on food pump but so worried, the upset stomach is just undoing any calorie intake i am having, just about hanging in at 7 stone, previously 8 stone, went down to 6 stone 8 before op, just feel and look awful, and i am so grateful to have had the chance to have the op, but is the shoulder ache normal. as you can tell, a proper worrier and overthinker. nothing like pain and lack of sleep to make me a moody cow!.
at the OOSU forum in great milton with Matt and the gang tomorrow, so looking forward to speaking to some like minded people that have been there, done it and wearing the t-shirt. maybe if you are going will catch you there
thank you jules
I can’t answer your questions Jules as I’m waiting for my hubbys op on 9 April ….but hopefully someone here can help or share experiences. Just wanted to send love and hugs for some improvement very soon.
Geraldine 
xx
thank you Mutti,
the amount of people saying just get stuck into cakes, chocolate, pitza to get your weight up, even if i wasnt coeliac couldnt tolerate that!! but thank you for your advice, not sure why have just gone into panic mode, then it hit me, with the immunotherapy its 3 monthly scans, which the waiting just pushed me over the edge last time, have left message for my new dieticians but hoping that at the forum get together, where there are people that have been through this, might give me some confidence 
maybe catch u at one of the lunch get togethers, and thank you for the kind words regarding weight, my feed tube goes into my smaller bowel, but hopefully when dietician calls back they will have some explanation, i know about the whole dumping thing etc, deffo wouldnt get 1500 calories in with food currently so cant see my little food pump friend going any where soon x
hi dibden d, sorry for not replying sooner, through the churchill hospital in oxford they put me in touch with the OOSU ( Oxfordshire oesophagael and stomach organisation) registered charity, which are working to highlight this awful disease, amongst many other things. didnt have a clue that there was such a group, when i had the breast cancer going on sept 2023, there was local meets ahoy,
really looking forward to going, but also bit anxious and bit nervous going as feel so tearful at the moment, no idea why, cant say its my hormones!, even had a cry for the boob i lost, ridicolous, no idea where that came from, probably a lot of things i havent dealt with.
but realise i am so fortunate to be here, thank you again forum family xx
