Last Flot tomorrow, CT scan on the 1st Feb

Hi Vonn

Yes it's a beautiful day here in Bucks too. Going for a walk and then some gardening later.

Hope Andy is feeling better and a bit stronger. It is tough I know but he will get there.

Thinking of you both

Best wishes 

Dean

Hi Dean 

The beautiful weather gives us all a lift I'm sure xx

Andy is doing well !! We went out for lunch for our daughters birthday yesterday which was lovely! Andy enjoyed some family time and slept for the rest of the day but  it was a massive achievement .

Enjoy your walk . We only have a small garden but it helps to keep me busy. 

Take care 

Vonn 

Xx

Good evening 

After waiting nearly all day the Doctor arrived and said that’s perfectly normal with nothing to worry about apparently it’s the muscles healing around wound site and could take up to two years before it retreats back into the chest cavity. So hopefully only one more sleepless night in hospital lying next to Mr Happy Clappy and probably the noisiest JEJ Feeding pump ever invented then as long as they can sort out some sort of transport I should be HOME!!!!!!

Hi Vonn it was nice to here that Andy’s been out enjoying life that what’s this is all about isn’t it Quality of life I feel excited to be here feeling a lot more positive about my future and it feels great. For the first time in months I feel I’m actually getting somewhere and a lot of it is down to you guys Thanks

Beast wishes

Aladair

Hi Alasdair

So pleased the doctor said the lump was ok and hopefully that means you will be home soon. I know it's frustrating to get set backs and I too was impatient to get better but you soon realise it's a long haul and you just have to take your time. Control the things you can and don't worry about the things you can't 

Hang in there my friend it will all work out ok in the end

Best wishes 

Dean

Hi Vonn

That is so nice to hear that Andy was able to enjoy your daughter's birthday celebrations, hope you all had a lovely day and wish her a belated happy birthday from me , those sort of days are special and ones to treasure.

Had a good day today so hope it continues 

Best wishes 

Dean

That’s good news, Alasdair. Hopefully you’ll be sleeping in your own bed tonight

Hi CB

Here I am waiting patiently to hear if I can go home or not just because some physiotherapist thinks my sofa is too low it’s now got to be surveyed to make sure it’s safe. I know Grandad65 keeps telling me not to worry about things I can’t control but sometimes I just get so wound up knowing I could run rings around this lot I mean all it needs is 4 blocks one in each corner 4 inches high job done Oh no we have to send a surveyor out first to assess the job and then a fitter to fix the feet 

I really think someone is taking the mick!!

When do you have your last chemotherapy session? is it that bad that you can’t complete the 4 cycles 

Im trying to work out at the moment how much cottage pie I can comfortably eat before I get what I can only describe as similar to reflux because yesterday I think I had too much and it wasn’t pleasant (hot flushes,stomach pain but more in my chest,reflux and the diarrhoea) then I slept for about 3. hours or is this the new normal for me 

Sorry to main about my problems I hope your getting on ok and not suffering too much with boney bum syndrome (BBS) I managed to get a young nurse to rub mine with cream this morning ( one of the perks of being in hospital) 

Anyway I best close and go back to sleep 

best wishes my friend 

Alasdair

Hi all

Sorry it’s me again 

Apparently my Potassium level in my blood is too high and the want it reducing before I can go home. Any advice would be appreciated 

Msny thanks 

Alasdair

Hi Alasdsir,

• I think your medical team must have taken quite a shine to you. They do seem so determined to keep you there. And how did you manage to convince one of them to massage cream into your cheeks?!! You’re obviously signed up for the platinum service plan! My third and last chemo session will be next Wednesday. That’ll mark 8 gruelling months to the day since I first went to my GP with swallowing issues. Eight months is long enough and I just want to be done with treatment, get the last tube removed from my body (I have had at least one tube hanging out of me since my February surgery) and get on with my recovery from surgery, building up my strength and stamina and trying to work on my eating. I also have a 4th grandchild arriving at the end of June and I don’t want to be feeling lousy for that. My pathology was good and my oncologist is fine about my decision. 
  I kerp my portion sizes very small otherwise I suffer similar symptoms to yourself. I also avoid having anything to eat after 7pm to help prevent reflux at night. I’m hoping things will improve over the next few months but I know it’s a long, slow road to a new normal. Fingers crossed that you’re home soon. CB

Hi Alasdair 

You really are having some bad luck aren't you. I guess they have your welfare to consider but that seems crazy about your sofa.

It's very frustrating and understand why it's winding you up. Everyone is different regarding the chemo. I only managed 3 rounds after my op but it was the consultant who stopped it because of my weight loss and nerve damage.

The eating is tricky especially getting the portion size right but I'm sure that will get better eventually.

Hope you can get home soon

Best wishes 

Dean