Not a question I was ever hoping I'd have to ask, but has anyone here who has had curative treatment, been given the all clear for a while, then gone on to get a metastatic spread elsewhere? If so, how did your treatment go, please?
I had the FLOT/op/FLOT sandwich, completed all 4 post op chemo, on the Add-Aspirin and SARONG trials, and feel bloomin' great. However, under the SARONG trial I had a CT scan and endoscopy last November and had the all clear from both, excellent results, except for what they said seemed to be a tiny scar on one lung. They said it might be an infection and I might require antibiotics, or possibly from where my lung was collapsed during the op (and subsequent complications I had afterwards).It wasn't cancer though.
Fast forward to my 18 month scan last week, and this spot is still there and they don't know what it is. They need to rule out cancer, so I am on the merry-go-round of tests again. You'd think I'd be used to it by now, but it doesn't get any easier 
All the anxiety has come back in bucket loads, especially after they referred the scan to the MDT team this week and oncology outpatients phoned this morning (seeing them next Tuesday).
Just wondering how others coped and what outcomes were for mets? Sorry for the long post.
