Hi. I'm writing on here to see if anyone has any experience with my wife's diagnosis and can give some insight on how their journey went or is going. We were told in February that she had cancer in the oesophagus junction which has spread to her spine. We were informed her cancer was pretty much inoperable and it would be palliative care she would be given. No surgery or immunotherapy would be undertaken but 6 rounds of chemo was advised. She has had 4 rounds of chemo so far but due to weight loss and fatigue her chemo has been postponed till she gets feeding tubes fitted to help get her back on track. We have just been informed over the phone that the tumor has shrunk but there is no change to the cancer in the bones. If I'm getting it correct she only had one round of chemo addressing the secondary cancer in the bones, which now they are going to try again with. I would appreciate any advise or input from anyone no matter how positive or negative the reply maybe. Not knowing what lies ahead in the future is the hardest part. Thank you
I’m sorry I can’t help with your wife’s exact situation but my elderly dad has stage 4. He could not be treated with chemo. I hope someone with a similar experience can help. But just take one day at a time and make sure you have and ask for support from the palliative team and district nurses when you need it. It’s so very hard to go through. Hugs to you.
Hi GerardR
I am very sorry to read of your wife's situation. I can't offer advice but can only tell you of my experience. I am currently stable after treatment and have been for 10months. My profile is there if you would like to read. Just click on my username. I was very unwell prior to treatment and in a lot of pain. I couldn't walk far and this was exhausting. I am 53 and was in good health (apart from arthritic aches and pains) before the cancer diagnosis. My appetite has been fine apart from during chemo and I am a healthy weight, probably a little overweight. I am pointing out these things for comparison as I believe they are all factors in response to treatment.
It's very hard to deal with the not knowing. I sincerely hope that the feeds get sorted and that your wife becomes stronger to be able to carry on with chemo. Best regards to you both.
A x
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