Hi, mentioned previously my partner has oesophageal cancer that’s spread to lymph nodes in neck and c3 vertebra, we had a palliative care appointment yesterday who dropped the absolute bombshell that she thinks he has about a year left
the treatment plan with the oncologist was 3 rounds chemo, scan to see how successful it’s been then 3 rounds more after any tweaking needed so we don’t know how well he is doing yet
so for this doctor to come out of the blue and say this prognosis, I think I’m more confused and obviously devastated.
Should we contact his oncologist and ask for some clarification?
My dad has been told similar, he had FLOT chemo, surgery and FLOT chemo last year however we found out in April this year that it's come back in his lymph nodes, liver, spinal cord and at the site of the surgery. He's been offered the same, 3 rounds of chemo, then scan and re-evaluate.
We had quite an in depth chat with his oncologist about what is driving the year prognosis so we understand much better now why so I do think it would be helpful for you to do the same. We went with a list of questions we wanted answers to and although it hasn't changed his situation at least our understanding is that much better.
It is a devastating thing to be told and I'm sorry your going through this.
Thank you for your reply, I got in contact with his regular nurse who said that the palliative doctor shouldn’t have given this terminal prognosis as we are awaiting results, plus some markers have come back so he’s able to have immunotherapy added
so still some slight hope, and added stress for no reason
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