Hi everybody,
I had a meeting on the 12th of July with my oncologist who has given me my treatment plan. 6 cycles of Capox and immunotherapy to run alongside it, continuing for up to 2 years if I can tolerate it.
First infusion yesterday and sent home with liquid meds as swallowing tablets not possible. I have to dissolve my Capecitabine meds myself though, and they gave me so much ppe to wear I look like a real scientist.
It's early days but no side effects yet apart from peripheral neuropathy.
I think this treatment is the normal first round for my stage t3n3m1 since operations are not on the table, nor me .
I aim to be here for that last infusion of immunotherapy in 2 years time and see where we are then.
I haven't come this far to only come this far. "Jack Morgan"
Steven
Hi Steven ..Loving your fighting spirit ..it will go a long way in seeing you through your treatment …I can’t really offer any advice as my husband’s OC journey was a different scenario to yours .. his was operable and he’s had a positive outcome up to now ..but I can definitely say treatment for OC has come a long way in the last decade .Trust the process and your medical team …lean on family and friends for support when you need it too…To be honest my husband has since said if it hadn’t been for the support and encouragement from me and his family & friends when the going was tough ..he doesn’t know how he would’ve come through it all
I’m sure you’ll find lots of support on this group too
Sending lots of positivity and best wishes your way
regards J
Hi Steven
I was also diagnosed with OC at 49. It was quite a shock. I'm sure your head is still spinning with it all. My journey has been a bit different. There is a virtual support group amongst those on the smart patients forum. Several of its members have been living with OC for several years - you may find that group supportive as well as of course this forum. I just wanted to wish you all the best. Please let us know how you get on.
Take care,
Suzy
Hi J,
Thank you for message, best wishes and positive thoughts.
I will definitely be using my family and friends for support through this, especially when my treatment starts to take its toll. Currently as the boys are on school holidays and I'm still well, apart from eating problems, we are trying to get some quality time in doing day trips but our low pressure weather system is limiting our choices.
Usually we like to do some walking and bike riding but are having to look at other things. I am a bit scared about being in crowds due to starting the chemo. I will be wearing a face covering indoors but is this going to be enough?
I hope your husbands recovery continues on this pathway,
best wishes,
Steven
Hi Suzy,
Thank you for well wishes and having read your profile it sounds like you have had a rough start to the year but I'm glad to hear you've got past it.
The virtual forum you mentioned, is it on this site or elsewhere as I couldn't see it.
Wishing you well on your continued recovery,
Steven
I think a face mask and sanitising hands if touching any surfaces in public buildings etc should be sufficient..To be honest my husband didn’t go out much whilst he was having his chemo as he didn't feel up to it ..He had lost a significant amount of weight at this stage and was feeling weak and generally fed up ! I had short walks near home with the dogs and we both spent a lot of time in the garden ….We didn’t restrict visitors though so we weren’t entirely cut off from civilisation ..You have children to think about so it’s understandable you want to be out doing activities with them especially as it’s the school holidays …Enjoy !
Best of luck Steven …stay in touch ..Everyone on this group knows exactly how you feel and we are all behind you
regards J
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