Diagnosis and treatment

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Hi, My father aged 76 has just got the diagnosis oesophageal adenocarcinoma situated 35 cm down from the teeth row. He has had swallowing difficulties since early March with painful swallowing. They have done an endoscopy and taken biopsies and also a CT where they found some enlarged lymph nodes near the tumor as well as a suspected lymph node further down. They also found something unclear on the liver but they do not know if it is cancerous. They now have told us that they will do PET CT, biking test and tests of the lung capacity. They are awaiting the results from the planned tests and the PET and wants the MD team to take a look at the pictures since they are not as skilled at the local hospital to decide whether an enlarged lymphnode is cancerous or not. However, the doctor was very negative to operation, he told us that it is a very large and complicated operation with very much side effects. If you have to be in intensive care for one month, you are lucky he said and he also told us that there is a chance tha patient wont survive the operation. He also told us that operation is the only alternative of cure. All this information is rather shocking and depressive news to us. Is it correct that such a tumor can not be cured without operation? I have read about both radiotherapy and chemo as well as immune therapy. You that did not get operated, how are your experiences? Best wishes, Annelie

  • Hi Annaliel,

    1. Sorry to hear dad's news. No one wants to join this club. I'm in it however, not as old as your dad but have similar condition. 30mm tumor just above my stomach. I should start FLOT chemo around the ninth then op and more chemo.
    2. The op is very complicated and takes around 8 hours. However, if he passes the stress test and everything else comes back ok why wouldn't you have the op. Its that that removes the tumor and nodes as far as I know. Maybe they are thinking that if the chemo shrinks the tumor and bearing in mind your dad's age that they can manage it without an operation. Does dad have other medical issues that they are concerned about I wonder?
    3. My cancer was staged as T3N1M0 as a comparison. There are other treatments obviously but do you get to decide? How do you decide? I've just been led by the medics on the assumption they know best. If op hasn't been offered I would have needed a good explanation as to why.
    4. I know this doesn't exactly answer your question but hope it helps a little.
    5. Good luck to you both.
    6. Geo.
  • Thanks for your kind answer Geo,

    Yes, we all hoped that it was something else than cancer my dad had in his oesophagus but sadly not. Maybe they think that chemo will be enough, I do not know. It is so hard with all this medical meetings where you just get small bits of information until the next test or scan. One feels totally in the hands of the doctors. His doctor asked him to think about whether he would go through the operation if the multidisciplinary team would recommend it. I think it is hard to decide when you not know what the alternatives will be and if thos expert doctors think it is possible I can not imagine why the patients should say no.

    Besides OC my father has atrial fibrillation but otherwise he is healthy and active. He also has a good appetite.

    I have read your story and hope for the best of luck for you and your family. By the way, how did you and your family manage to go through the tough time with medical tests an so on? Any tip regarding how to cope during such difficult times?