Immunotherapy Colitis/C Diff

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Hi all,

I’m Mark, 46! I was diagnosed with OC at the G E Junction. 

I’ve had 4.5 weeks of Chemotherapy/Radiotherapy back in Dec/Jan with an op in April this year 2022! All went well and the histology showed no signs of spread,

Right now I’m on a years course of immunotherapy (nivolumab?) and have had two sessions. It’s given me really bad diarrhea and turns out it could be C Diff? Hopefully it won’t turn into full blown colitis! 

Just wondering if anyone has had experience of this at all please? It’s nasty. Really nasty! Immunotherapy is magic stuff apparently. Fairly new for this type of cancer…the hope is to decrease the chance of it returning.

Thanks all!

  • Hi Mark 

    Sorry to read that you have had some nasty experiences with the Nivolumab, I hope that this has settled down a bit since you wrote this post.  It is great news regarding the histology report and your response to the operation .

    My husband has been on a different targeted therapy called Trastuzumab,  The MAB treatments seem to be the main Immunotherapies.  

    Initially he did experience some discomfort like you have mentioned, no warning either which was what upset him the most, but it did not last too long and I hope that this is the same for you 

    We believe that the treatment he has been getting has literally been a life saver, especially as he is not suitable for operation, and was given a very poor diagnosis, so hopefully it continues to provide the magic to you both and you soon experience less side effects being on your treatment . 

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Hi Lowe,

    So sorry for the delay in replying to you. I appreciate your words.

    My side effects didn’t really get better, but after every test you can do they ruled out anything else but pure immunotherapy related. Which is a plus I suppose! I’ve had My 3rd treatment delayed by two weeks to hopefully balance me back out.

    Best wishes to your husband and I hope the treatment continues to work its magic Like it seems to be.

    Immunotherapy send to be the answer to many with this horrible disease. What an amazing world of treatment we live in, albeit uncomfortable at times!

    Thanks again, Mark.