A quick (?) Question

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Hi All 

I'm a complete newbie to all this as my diagnosis is not fully in yet...still more tests,etc. How long, on average, is the wait between the assessment being completed and starting treatment whatever it may be? I'm hoping to have a CT scan in the next few days and the biopsy results to be in so they can grade it, etc. So of course going crazy waiting so I thought I ask on here about people's experiences of how long between assessment and some sort of treatment starting? Thanks

  • I too am in a similar situation. CT, endoscopy and biopsies done but further biopsies needed. I have waited 2 weeks dispute chasing everyday. I am just in the endoscopy waiting list. Despite my consultant saying he wanted a repeat immediately.  

  • So sorry I can’t give any idea in times for treatment. But all the best to you 

    1. Hi Suzie W l was diagnosed immediately after the endoscopy over a month ago, then a CT scan 3 weeks ago confirmed it then PET scan to see if it had spread 2 weeks ago. Just had a meeting yesterday with the specialist GI nurse  I need chemo Radiotherapy then the big op. I have been referred to the oncology team but still waiting to hear from them. Waiting is the worst and I am so sorry its making you crazy(l am the same!) they will get back to you and appointments will kick in. Best wishes on your treatment and hope you get some answers soon
  • Thanks everyone. This helps to set my expectations. It's only been 2 days since the endoscopy and its felt like years. I had thought it would all be much quicker. 

    Wishing you all the best around treatment 

  • I was diagnosed in early January and started my chemotherapy in mid feb followed by operation early June and now I’m having the post op chemotherapy 

  • Had urgent referral for endoscopy. Then results 2 weeks during consultation with Upper G I consultant later along with CT scan. CT scan showed it was operable. PET scan a week later & consultation with surgeon. PET scan showed no cancer spread anywhere else. Two weeks later Oncology appointment. Hickman line fitting 2 weeks later & 1st chemo 4 days after that. It was roughly 2 months from diagnosis to treatment start. Diagnosis June 6th, 1st chemo 1st August. Once appointments start coming its all go!! Hope you don't have to wait too long. But ring them if you're concerned. Julia

  • Thanks for giving me sn idea of timeframes.

    Di B D - I hope the next bits happen quickly for you. The waiting sounds horrible. I hope it all goes as well as it can 

    Alarty - it sounds as though its all moving quickly. Best of luck with it

    Bowndog - thanks for this. I hope it's all going ok for you

    Kells- so pleased treatment is happening and that it hasn't spread. Best of luck 

  • Hi SuzieW,my husband had a endoscopy on April 27 this year they seen what they suspected was a tumour they performed a biopsy which was sent away  he then went for a CTscan  he then waited another 2 weeks for the results of the CTscan then the doctors decided he needed a PET scan after 3 weeks the results came back the doctor decided what treatment he could have , he then had to wait another 4 weeks fir the results to see whether he was her2 positive or Pdl1 as this can determine if you are suitable for immunotherapy all in all he started 5 palletive radiotherephy last week in June then started his chemo on about 27 of June and has just done his next round  so it's been well over 2 months for hubby it all takes time but  once you are up and  running in the system  with treatment you seem to be kept a lot more informed of your plan and my husband can call up the specialist nurse if he's unsure of anything and also his consultant who is great by the way we are under the North East hospital Trust also at first the macmillion nurse who hubby seen could answer any question or concerns  

  • Kristalclear, Thanks for the timeline. How is your hubby getting on?

  • Hi SuzieW,hubby's now on to 2nd round of chemo and immunotherapy he's had a few side effects,tingling in hands and feet,nausea,hgher blood sugar levels as he's also got diabetes but he was told  this could happen due to the steroids he has to take for 3 days after the chemo and tiredness that just seem to come over him after the 1st lot of chemo the side effects lessened after 7 day  time   he can now eat a lot better as before hand hardly anything was staying down some ppl he's talked to have hardly any side effects then some have more when the doctor knows what your having they will go through it with you I go with my hubby to every consultant appointment as I then ask questions that maybe he wouldn't ask or wouldn't think to ask and also as support if you have some  one you could take along with you for moral support , if your unsure or need a answer  about anything call your specialist nurse as they are normally very good