Survival stories

Its not selfish at all. We all want the best for our loved ones. You can check this out this book if you want. A long term survivor with GBM.

https://www.amazon.co.uk/gp/product/1469953900/ref=oh_aui_search_detailpage?ie=UTF8&psc=1

All the best.

Hello again

There are indidual books around as suggested . Another by Martino Sclavi. I have met him and a number of other long term survivors all leading a pretty full life. I am around at twice my predicted demise and still plan to be here in another year’s time. The book by Ben Williams is also the story of a survivor and a recipe for it too. All are on Amazon. It is easy to find statistics often depressing but each of us is a statistic of one. There are survivors , very real people. Some will be busy getting on with life, no longer lurking here but doing what we did in the life before.

Best wishes

Brian

Thank you guys, I’ve bought a couple of books one on surviving terminal cancer which I think is the Ben Williams book actually and one called the magic bullet. I will work my way through them soon. I suppose a lot of it is down to luck and how you’re body responds to treatment. I’m relatively positive, with the goal of him surviving over 18 months. We will just have to see how it goes. 

Good luck to you all, keep doing what you’re doing as it’s clearly working x

Nope not selfish! 

Reassurance & hope seems to be what you’re seeking?

Ok.... the prognosis statistics I was given and it was pointed out at the time that they were median statistics - was 12-15 months survival after diagnosis.  

I’ve made it to 28 months have had 2 craniotomies, chemo & radiotherapy but I’m back working full time in a senior management role which also includes commuting (by bus not allowed to drive)  although I’m not sure how much longer I’ll be able to continue to be honest as I’m tired. 

At a recent results appointment I met an ex colleague who had been diagnosed with a glioblastoma4 7 years previously. He was very well & enjoying life.  I know of someone on aother forum who was diagnosed 12 years ago. For me it’s always been not about longevity but quality of life. We are all different and for some the cancer is more aggressive. Ive spent the last 28 months learning about the  different path I’m now on and trying to accept my illness & my mortality I feel lucky most of the time but at others its hard to remain positive. Especially when I’m tired! I wish you well 

Take one day at a time. 

This is a lovely message to see 2 minutes into 2018. Thank you. It had been forwarded onto all my nearest and dearest etc. I really appreciate it . Happy new year lovely xxxx

Hope this is a good news story as I am coming up 5 years since diagnosed out of the blue in April 2013 - see profile for details of treatment etc . Unfortunately just found out last month cancerous cells appearing so back on the TMZ for 5/23 cycles as of last week and I have feeling not going to be as straightforward this time but can beat it again. Important thing to me is that my children are older now (21,19 and 13) though the youngest, our daughter was just told mum's brain problem back again but the 2 boys were told truth in 2013. 

Even though I have been absolutely fine for last 4 years since treatment ended my husband worried all the way (he is worried type) Suppose just depends on personality - I have never got passed the denial stage.

Take care

Susan

Hi,

I hope you are all doing as well as you can. I only recently decided to learn about GBM4, which is strange because it is a condition that has enormously effected my life. I however wanted to reply with a message of hope for what is such a deeply unfair thing to happen to families. I just wanted to let you know my mum was diagnosed with GBM4 in 1986 when I was 11, she survived 8 1/2 years which was a life changing amount of time for me, it meant she lived to see my brother and I into our late teens. I have not really looked into GBM4, I am not sure why,perhaps because she remains a great loss in my life even 23 years after her death but reading people's messages in which they are looking for genuine provable cases where people survived with this condition long after the "average" survival rates I felt she would want me to let you know. I 100% know someone who beat those odds. I wish you all time and hope. 

You and people like you give me hope. You ve shown a beautiful example even after a long time and you didnt have to do that all. Hugs.

Kind Regards

M

Hi 

I haven't posted before but would like to share a long term survivor story as my husband is 7 years since last November. He had a period of 4 years of no return but the last 3 years has had treatment and is due another operation on 17th February. He has had a reasonable quality of life also but depression has kicked in for the last year, but he has been able to see the children grow up, currently 15 and 13. The first year is really hard when you just do not know the outcome and live day by day, but its hopeful to know that people really do get past the 5 year survival mark. Post surgery we will wait for the next scan. 

Hello Amanda

I am so pleased for you both, that you have reached such a milestone. Often we do not hear from survivors but they do exist. I have met some and read about others. You give everyone here hope. Thank you for taking the time to share. I hope your husband’s further surgery goes well

Best wishes

Brian