Survival stories

FormerMember
FormerMember
  • 36 replies
  • 20 subscribers
  • 71738 views

Hi, this may sound selfish but I really need to hear some success stories, my family are really struggling to stay positive and everything on the internet is so depressing. I know people can’t survive forever but there must be people who exceed the statistics surely? 

  • FormerMember
    FormerMember in reply to FormerMember

    hi justfortoday

    I am so sorry to read your story.  I cannot imagine what you and your family must be going through.  I have an 11 year old son too.  I really hope you have all the help, support and treatment you need and you find the strength to get through it.  You sound like a very strong person.


    My husband was diagnosed with a tumour in the frontal lobe in April 2013, had an op in May which removed most of it then radiotherapy for 6 weeks followed by 9 cycles of oral chemotherapy, temozolamide.  It did recur less than 2 years later and he had chemo again for another 6 cycles. 


    I am thinking of you and please ask me if you have any more questions.

    kindest regards





  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    Great to read your message, fantastic news.


    I'd love to understand more details about the remedy you've discovered. I'm Sept 2017 Glio Grade 4 so it will be great to know more...


    Thanks again for posting, 


    All the best


    Chris 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Gem, and everyone

    I loved your post, I became part of this group because of my mum, she lived 8 1/2 years from diagnosis, and she was diagnosed in 1986  (I am not in anyway medical but I like to think we are better at the medical stuff since then) . I started posting because I had noticed people were looking for genuine stories of survival longer than the Google statistics. Your story and attitude are a genuinely great start to my day.

    I wish you and your family and everyone else who reads these posts a happy weekend.


    Mark


    P. S. Perhaps get another cat? 

  • FormerMember
    FormerMember

    Hi My partner then aged 65 was diagnosed with Glio Iv in June 2016. He had debulking op, the  30 x radiotherapy with adjunct chemo and 6 months of 5/28 chemo. Last August and Nov scans showed tumour still shrinking and last scan in Feb showed all stable. Now a year since any medication: he is a bit tired and his short term memory not good and he is a lot more needy and emotional than he used to be but he is really pretty well and we are getting on with it. 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Brian,

    I’ve read a lot of your responses to messages on this site and just wanted to say how much I admire your calm and positive attitude. You remind me of my amazing husband and I salute you, Sir. Keep on keeping on and fighting the good fight! Best wishes and positive vibes coming your way, from me to you. Regards from Surrey ☀️

  • FormerMember
    FormerMember in reply to FormerMember

    Well said! X

  • FormerMember
    FormerMember in reply to FormerMember

    Fantastic! Go Gem! X

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Tigger

    You are very kind writing as you have. Thank you. I wish you well from the County next door, in a southerly direction, East Sussex.

    With Regards

    Brian

  • FormerMember
    FormerMember in reply to FormerMember

    Hello,

    Love your story.  My son (24 yrs) is 8 months into treatment. We are looking for alternative treatments as we have no options other than Chemo.  Would like to hear more about what you are doing.