My husband has Grade 4 Glioblastoma and finished initial 6 weeks of radiotherapy and chemo 2 weeks ago. About to start just chemo. Other than bad back, gout and pneumonia thrown into the melting pot he has coped well. However yesterday his left arm has gone numb with a loss of strength in it. Had check over at hospital they don't think he had had a stroke. The rest of the left side of his body is fine just his arm. His tumour was debulked and on right hand side. Has anyone had experience of this?
HI Elfrida
a warm welcome to the group. Sorry to hear about all that's been going on. Life's cruel.
You did the right thing getting it checked out. Will the team you spoke to update his oncologist? If not, it might be worth a wee call to them just to let them know of this change.
My late husband's tumour was the opposite side and we were warmed from early on that he may experience weakness on the opposite side. It is quite common to experience physical weaknesses with a GBM journey but my rule of thumb was always if it was worrying me then I needed to call it out.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and someone to give you a virtual hug when its needed. You're not alone. We're here for you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
Please also make sure that you are taking care of your wee self here. This is a tough gig and taking some "me time" when you need it to recharge your own batteries isn't selfish, its essential.
For now though I'm sending you a huge virtual hug and lots of strength.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
