Hi All, I just wanted to introduce myself. My name is Lee I’m 48 and I was diagnosed with follicular non Hodgkin lymphoma in April. It took 4 months to diagnose me after numerous trips to A&E because of pain in my stomach. the lymph nodes in my retroperitoneal...
Hello - I’ve just been given an “incidental diagnosis” of follicular lymphoma with a mixture of grade 2 and 3a disease. They say it’s low grade. I have my first appointment with my haematologist tomorrow and hoping for some words of comfort or advice...
Hi there My uncle has recently received his diagnosis of FL3A, however, we've been advised it is an aggressive variant. I'm a little confused and am struggling to find accurate information on this type of FL as everything says 3A is slow growing but...
Hi am new so just to introduce myself
Hi, am new here, I have lots of things apparently :( Follicle Lymphoma its called and its Stage 4A, it has moved already to my Spleen, my stomach, my skin and my muscles...am on my own in the world, my 3 children do not want to do something with me, one...
Hi My husband has just been diagnosed with follicular lymphoma. The haematologist suspected it was an aggressive Large B cell as the lump came from nowhere and grew big quickly. 5x5 cm on collar bone. Hes still waiting for bone marrow test. But his...
Hi everyone, I hope some of not most of you are doing well. Sending love to you all x I have been speaking to a lovely man know as Mike (The Highlander) on here about my recent diagnosis and the treatment they have said they are going to do but I...
This is my diagnosis and advice to have no treatment, but “watch and wait” I’m wondering how many people out there are in this “boat” and if you feel satisfied with “just doing nothing” I’m trying to work out what I can do to beat this naturally. Is there...
Hi, I have never joined a support group but I’m hoping someone can help me with my fears. My Dad died in April last year and so have put my own health to the back of my mind. I’ve had a hard lymph node in front of my ear and after my third biopsy I was...
Hi Everyone Hope your cancer journey is made easy for you. My Other Half is due to start chemo for follicular lymphoma in St George's, London, in a few days, I'm joining this group as I feel like I don't know what I don't know and other people's experiences...
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