Hello!
I'm Jayne and I was diagnosed with follicular lymphoma on March 1st this year, purely by chance. I was referred on fast track by my GP for an endoscopy after seeing her with constant heartburn even though I take Lansoprozole. That was a big fail and the consultant referred me for a CT scan, I had two within 4 days, one with dye and the other was a barium meal. Two days after the barium meal, I received a call to say they had found that I had enlarged lymph nodes and I was being referred for a biopsy on fast track. A little over three weeks after that biopsy, I got the results... it was follicular lymphoma.
To say I was shocked is an understatement, the only symptom I had was that the day after my dye CT scan, a lump appeared on the back of my head! Since diagnosis it's been a whirlwind of appointments and tests, one of them turning up a kidney problem (again with no symptoms) for which I need another CT scan and possibly a stent fitting. I'm finding it hard to get my head around the fact that I have cancer, but nothing is being done yet as far as treatment is concerned because it's very early stages.
One or two so-called friends have been very dismissive of it, one even questioning me on what treatments I was having if I had cancer? The other saying her husband had a blood disorder, he's fine! But in the main, my friends have been amazingly supportive. I have two daughters (40 and 34) raised them as a single parent, a gorgeous 11-year-old grandson and a wonderfully supportive man in my life, I'm very lucky in that respect.
We haven't told my grandson what's wrong yet, but we will be soon before he accidentally overhears adults talking and comes to his own conclusions!
Hi just home from my daughters as I work for her on Wednesday and just had my second AZ vaccine. A very odd way to start my post but this is me 31+ years on from first being diagnosed with another low grade NHL..... as my friend John says, see this as living with a chronic (treatable) illness.
I had a long journey as my type of skin NHL is rather rare and at times challenging....... but I am in remission and doing great (see my profile)
John has given you a link to Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma Zoom support groups and indeed a great Lymphoma Buddy Service.
We are around to help you navigate this so do come back with your questions at any time.
Good morning Jayne and good to see you are accessing various support platforms. as this does help you navigate the journey and helps you deal with the whirlwind between the ears.
Each one brings a different flavour of support. The Macmillan Support line is open 8am to 8pm, 7 days a week and you can always put up a post to our Experts in our Ask an Expert section.
LA is Lymphoma Specific with various opportunities to connect with people with the same condition as yourself..... and you may well bump into John and myself from time to time 
Hello
The same time frame as me then! It seems to be the same way a lot of people are diagnosed with it, completely by accident. If I hadn't got in touch with the doctor about heartburn, I'd still be oblivious to it.
I keep saying something similar, mine is "It's cancer, but it's treatable" My only symptom is two lumps on the back of my skull/behind my right ear, other than that, nothing. So I'm also on active monitoring, my first bloods were drawn a fortnight ago and I have another CT scan booked for Monday, but that's for the blocked kidney that turned up in my first ones. If I didn't have a sense of humour I think I'd be in a corner rocking and dribbling 
Leukaemia? That word hasn't been mentioned to me at all, it's Lymphoma or Follicular Lymphoma or Non-Hodgkin's, I know it's a blood cancer, not a tumour, but cells in lymph nodes. That's how I'm explaining it to my grandson tomorrow, but I won't mention cancer, he's 11, it would terrify him.
Good luck to your husband, may we both go forward without treatment for a long time to come! x
Hi
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