Hello!
I'm Jayne and I was diagnosed with follicular lymphoma on March 1st this year, purely by chance. I was referred on fast track by my GP for an endoscopy after seeing her with constant heartburn even though I take Lansoprozole. That was a big fail and the consultant referred me for a CT scan, I had two within 4 days, one with dye and the other was a barium meal. Two days after the barium meal, I received a call to say they had found that I had enlarged lymph nodes and I was being referred for a biopsy on fast track. A little over three weeks after that biopsy, I got the results... it was follicular lymphoma.
To say I was shocked is an understatement, the only symptom I had was that the day after my dye CT scan, a lump appeared on the back of my head! Since diagnosis it's been a whirlwind of appointments and tests, one of them turning up a kidney problem (again with no symptoms) for which I need another CT scan and possibly a stent fitting. I'm finding it hard to get my head around the fact that I have cancer, but nothing is being done yet as far as treatment is concerned because it's very early stages.
One or two so-called friends have been very dismissive of it, one even questioning me on what treatments I was having if I had cancer? The other saying her husband had a blood disorder, he's fine! But in the main, my friends have been amazingly supportive. I have two daughters (40 and 34) raised them as a single parent, a gorgeous 11-year-old grandson and a wonderfully supportive man in my life, I'm very lucky in that respect.
We haven't told my grandson what's wrong yet, but we will be soon before he accidentally overhears adults talking and comes to his own conclusions!
Oh that was good! They're a bit puzzled why mine is blocked, because I'm only early stages of FL and the nodes shouldn't be blocking it, so he was under the impression I might have been born with the problem; although I've only ever had a handful of water infections and no kidney pain or problems...I'm a medical enigma! 
That's what I'm bothered about is the constant feeling of needing a wee! I sometimes feel like I have a little left after I've been and that is annoying. Still, if it needs to be done, it needs to be done.
Did you have yours done under a local? In through the kidney? That's really all I'm worried about having it put in.
That's odd isn't it? I have had sedation for endoscopies before today and not remembered a thing about it other than before and after, so hopefully I'll be the same for this doing. In the leaflet it says I'll be a day case, so maybe not an overnight stay, it doesn't mention a catheterisation for afterwards either, but what will be, will be and all that. I did wonder how it would be removed, I think it's the thought of having my legs splayed and everything on show, whilst knocked out, that fazes me for that bit
I chased up the urologist yesterday as it's a fortnight since my "urgent" scan. He's seen the results but is on annual leave, but is back today and wanted radiologists to look at my scan again before discussing it with the multi-disciplinary team on Monday. So I should hear something about it next week I think.
