Hi Friends, thought its about time i checked in with you all! I hope you are all doing great on your individual journeys! Mention to The highlander, GLANN, TKJEDI, you were all kind enough to write to me when i was diagnosed, which helped enormously!...
I have had 4 treatments in 3 weeks and feel so rubbish. Apart from the overwhelming fatigue and nausea which comes and goes now I just feel as if my body has taken such a battering that I'm finding it hard to cope with everything. My emotions are all...
HI. I have joined this group as it is more pertaining to myself, and I can also view the main website which is extremely useful. I was diagnosed with the above some 5 years ago - I was on the watch and wait system, as apparently, they do not want to...
I have FNHL and am on my first cycle of chemo and antibodies and then 2 lots of antibodies (1 more lot to go) . I am going day by day as I never know what tomorrow will bring but I am struggling so much at times. I seem to have pretty permanent nausea...
Hi everyone, you seem like a really nice group of people. Ten years ago, aged 43, my husband was diagnosed with FL. I don't need to tell you all what a horrible time that was for us both - panic, fear, off-the-scale worry, lots and lots of unbearable...
Hi I am here as TeddyD, and I have lurked about several groups and made a few posts over the last couple of months whilst undergoing the diagnosis process. I feel like I have seen every medic in the county, given enough blood samples to satisfy a...
Hello again, I’m trying to understand this cancer and don’t really want to keep asking the CNS nurse. I thought Non Hodgkin Lymphoma was in your Lymph nodes but after reading it can be be anywhere or have I read that wrong? My husband has enlarged lymph...
Hi all, anyone experienced something similar? My daughter diagnosed with follicular non Hodgkin’s lymphoma a year ago. She had another pet scan last month and altho the cancerous lymph is stable, thickening of the throat showed up. She is in quite a lot...
Hi...been a while since I was here and happy to say that my lymphoma has become inactive, though there is no guarantee it will not come back. As a result of the radiotherapy all that's left is scar tissue which is the only thing I can feel in the area...
Hi, Everyone I am two weeks into my first cycle of Rituximab/Bendamustine treatment for FL. I am not experiencing any nausea or loss of appetite (luckily) but have seen a meaningful drop in my weight (90kg to 84 kg) for the last two weeks. Some weight...
