Hello, Im new to here, living in Inverness, have been on w and w for follicular for two and a half years. However the time for treatment has arrived due to swollen nodes pressing on my vena cava inferior. I had my first R Benda last Monday, so I think...
After the visit to the haematology department they want to start me on R-CVP chemotherapy. I feel so calm and at peace with the decision it is strange. However I am trying to organised and more prepared. Can anyone recommend good links/books of what not...
I am so confused and have no trust in the hospital. Last year I was diagnosed with Follicular NH lymphoma in three lymph nodes in the stomach area. They said that it was slow growing and wanted to a a 'Watch and Watch' treatment. I was seen twice with...
Hi I have Follicular Non Hodgkin lymphoma and have just had my second chemo of six sessions, I had the most painful neuropathy this morning getting out of bed, it was in my side radiating into my lower back, honestly I have never experienced pain like...
Hey all My hubby was recently diagnosed with NHFL. He's had surgery to have a lymph node removed from his neck which was successful and confirmed diagnosis. From this he has had PET scans CT scans, blood work etc etc. I'm sure you're all familiar...
Anyone have any experience with CT DNA monitoring for follicular lymphoma. I'm having it for a prior colon cancer resection, but was wondering if it could be used for FL monitoring too.
Hi all my husband was diagnosed with FL stage 4 last September. He has had 6 rounds of chemo O-chop and 2 rounds of immunotherapy so far. all seemed to be going well on his interim scan in November but his final end of treatment scan in March showed...
Hello everyone. To keep a long story short. I was diagnosed with stage 4 lymphoma. Did chemo alongside intrathecal chemo into spine and then immunotherapy afterwards. I finished last year but since all that I have been getting cognitive problems with...
Hi I’ve been diagnosed with Follicular Non Hodgkin Lymphoma and I start chemo on 17th March, I feel so nauseous all the time and the nodes that are around my throat are making it difficult sometimes to feel comfy when eating or lying down, is this normal...
Hello I was diagnosed with follicular lymphoma last Sept. Ive recently had xray and mri on my left shin bone as had pain for a very long time and its been masked by my osteoarthritis. Today my CNS called me with results of my biopsy which shows diffused...
