Obinutuzumab maintenance

Had no maintenance so can’t help you with this one but have you talked this through with your team?

Yes but cant get a definitive answer one way or another, basically it's my choice.  

This is often the case and not helpful.

Do also check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos a dedicated Lymphoma helpline on 0808 808 5555 (Mon to Fri) and run regular regional online Lymphoma Zoom support groups and indeed a great Lymphoma Buddy Service.

Thanks for that, I will certainly take a look.

Hi, I too had cvp and am now about to have 11/12 obinitusamab. I've had infections on and off for the whole time as your immune system  can't fight stuff like it did prior to cvp.  I've been told Obinitusamab gives you the best chance of long remission.  I had a reaction to Bendamustine and was in hospital for 3 days so changed to cvp. Good luck xx

I didn't have maintenance the first time and relapsed very quickly. This time having it so we shall see.

I didn’t have maintenance and relapsed in 23 months from end of treatment.  Doctor said, though, that maintenance would have added one extra year…not lots of years. I actually saw him yesterday and asked about it,  It’s a tough decision with no perfect answer. 

Thanks evryone for your comments. Just to update you, I decided to continue the Obinutuzumab and im now about half way. No further issues and feeling good so far.