Hello,
I was diagnosed 3 years ago with FL. Lots of little tumours all over - no "B" symptoms.
And I have been reading your posts and comments ever since.
Like many others, after digesting the psychological twist of "watchful waiting," life went back to (close to) normal.
A few months back, however, I noticed one of my lumps become more active.
My hematologist/oncologist requested a PET scan and it turns out that two of my tumours had unusually high uptake readings.
Convinced that my FL had transformed - my doc had me begin R-CHOP immediately.
A biopsy was performed on one of the busy tumours and it turns out that there is no transformation - just a more aggressive version of FL.
This changed nothing in terms of my treatment plan.
The care has been overwhelming. I am filled with gratitude.
I can confirm that days 7-9 post R-CHOP are the pits. Today is day 12 and, thus far, it's a good one. Might have a whisky a little later.
Thanks for sharing your stories - they make a difference - best of luck to all. Merry Christmas - and may 2021 be one h@ll of a lot better than 2020.
Ted
www.bullofthewoods.org/.../fqvso9ov8eswht6kl0tn4ppka8ns17
Hi Ted, well done navigating to this point and let’s look for the second half to be uneventful for you.
At the start it all looks so daunting and impossible but the end is now in sight.
Have as good a Christmas as restrictions allow and let’s look for positive developments early in 2021 so we can all move on with life.
We have all been there is some way..... ‘new normal’ is a phrase that is often used.
At times, living the post cancer journey is like living in a parallel universe - you can see your old life but regardless what you do you can not get back on that same path.
Following my many years of treatment and now 5+ years into my post treatment life, a situation I was unwillingly put into. It did actually make me review life and everything that we once thought important.
So some things from our old life are still in our lives but various aspects of our old life that were once seen as important were put in the bin and we don’t miss them.
You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones that will have to be navigated.
