Starting Treatment 27th December 2018

FormerMember
FormerMember
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Hi

Have been diagnosed and starting treatment after Boxing Day they are using R-CHOP treatment my cancer is in my stomach and spread to the chest they tell me that is quite common with this form of F Lymphoma

They tell me my first chemo session will last between 6 and 7 hrs and I will be stopping in hospital for at least overnight then I will have Chemo as an outpatient in three 3 week cycles

Just wondered if anyone can give me an idea of what to expect I know the hair loss etc just wondered how I will be feeling in the days after treatment

Any useful information for me and my wife we would be grateful

  • FormerMember
    FormerMember in reply to FormerMember

    Afriad I'm a bit down having been gearing up for treatment to start today for a couple of weeks, it'll take a couple of hours to get myself back on track...

  • ......all part of the Rollercoaster we all have to get on.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Yes I am coming round and they did say they will have a bed tomorrow so here's hoping 

  • FormerMember
    FormerMember in reply to FormerMember

    oh no, bedrockfred, that is not good news for your mental wellbeing.

    As everyone on this forum knows, 'waiting' for just about everything to do with cancer is almost the worst thing about it.  

    But as Highlander said, for Follicular Lymphoma in particular, a delay in treatment in no way affects the outcome.

    I'm feeling slightly guilty, as my treatment went without a hitch this morning, and I definitely sent you positive vibes, so very disappointed for you.

    At least tomorrow, they will have all the resources in place to look after you properly, which they wouldn't have today if thats any consolation.

    Take care

    Tina

  • FormerMember
    FormerMember in reply to FormerMember

    p.s. bedrockfred, 

    when i went in for my first R-Chop, I also had to have a bed allocated.  In the end though, they sent me home after treatment which lasted a whole day, because I didn't react badly to it.......so maybe.....

    Best Wishes

    Tina

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for that glad your treatment is going along as it should really pleased and you have cheered me up maybe I'll be like you and won't need that overnight stay here's hoping

    My spirits are on the rise again 

  • Hi all my treatments were on the day ward - chemo unit and for a number I had a bed as the were 4 in the corner of the unit as one of the side effects can be a drop in blood pressure which is why they check it every half hour, the are other possible side effects to, so to play safe normally they do the first on a bed and if your ok the rest will be given sitting in a chair. 

    We all understand the disappointment but it will be fine as many of us have experienced one or two during treatment and after.

    John 

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • FormerMember
    FormerMember in reply to johnr

    On a bit of a high now got a phone call a couple of hours ago and I am now in hospital  they sorted the bed out 

  • FormerMember
    FormerMember in reply to FormerMember

    Oh good there is finally some action, you must feel like a weight has been lifted.  Good luck and we'll see you the other end!

    Best Wishes

    Tina

  • FormerMember
    FormerMember in reply to FormerMember

    All pre chemo things done ready to start chemo tomorrow around 8am to 9am is what I'm told