Starting Treatment 27th December 2018

Just heard from my nurse my scan is on the same date 20th May and my appointment to see my specialist is now the 4th June at 09:50 and my first maintenance treatment the same day at 14:00 

I'm glad that's all sorted going to be a long few weeks to the 4th June and finding out my scan results 

I will cross fingers for  u

Fred it'll go so quick!

I have my appointment for bloods and doctors same day and 7th for the immunotherapy.

Thanks Fred, 

Yes, everyone is different.  I was given a handout that said moderate alcohol was ok.  I rarely drink, but at Easter I had probably two standard drinks (a large glass of wine) and have to say I didn't really like the effects.  Nothing serious, just felt more inebriated than two drinks should have caused and woke up with a headache and telling my wife I didn't think I would do that again. But other people on the board have the odd drink and it doesn't affect them at all. I am drinking more water now, thanks for that advice, and I do have a dog that likes to walk!

Wayne 

Thanks Paul!

So with every cycle, it got a bit harder.  Darn. To put your and Fred's advice together it is listen to your body and ask lots of questions. I can do that.  Next week I start cycle 2, we will see how that feels. I'm starting off in not as good shape as you (my 5ks are pretty close to 30 minutes, marathons around 4 hours).  My thoughts right now is to do the half and if I end up walking the end and taking 2.5 hours I'll still have fun and just accept that is what my body can do right now.  But we will see.  

Best of luck on the RideLondon. That sounds like a blast!

Wayne

Wayne that's the way to go don't push yourself too hard little and often is good my Dr said to me my 3 plus miles the with dogs is plenty, must say with fatigue I suffered with just a short walk was enough some days

Take advice from your team and ask ask ask if they are anything like my team they'll keep you on the right path with plenty of good advice 

Don't forget drink plenty it gets the horrible stuff out of your system and keeps your kidneys in good order

All the best 

I guess a lot of it is down to how fit you were before treatment started.

Running and cycling were never ‘my thing’ before so I don’t suppose for one minute they will be now - lol.

Paul I can’t think of anything worse than 100 miles on a bike - go for it mate

However I have continued to work full time - only taking days off when in hospital and that is what has kept me sane during the last few months.

As has been said before - we are all different. Listen to your body and your team.

Nicky

Well over 2 weeks since my 6th cycle of chemo and fatigue is still with me along with headaches 

I am able to do a bit but get tired and legs ache hopefully as the days go by this will sort it self out 

Good luck everybody

As long as you continue to put one step in front of the other I call it progress.

Hi Mike yes your right take every day as it comes, hope you don't mind  me saying this but you have been a big factor in me remaining positive your a legend thank you