Starting Treatment 27th December 2018

Thanks Allan your not wrong will be an anxious wait checking letter box every morning for the appointment letter lol

Good luck to you and keep us informed

Together we are stronger 

Hello Fred,

Now I'm getting jealous lol,  "just a jab every 2 months", mines 2-3 hours, with the travelling, its a 5-6 hour trip for me.

Hey,

yeah, me too. I wish they could do Obinutuzumab by a jab rather than a 5 hour IV

paul

Hi boys

Well add on a 2hr round trip so maybe 3hrs with waiting time 

Still better than the 7hr plus travel for the chemo

Good luck boys

Together we are stronger 

Hi,

the pharmaceutical companies rely on their patents not expiring for profits so just when the patent is up for IV obitinimuzumab they’ll the release a jab version of it.

they could do it now but they make more money waiting until the last minute so no one else can copy it.

its a shame for the patients, but it’s the way the world works. 

Healthcare is unfortunately driven by profits rather than patients and I’m in the industry so know exactly what the situation is.

Hello Paul,

Yes its a bit of a bind isn't it.

The side effects are kicking in today, fatigue, headache, Stomach pain, roll on a week or so, at least I've had my 6 cycles and can look forward to just the maintenance cycles without the side effects

Good luck everybody and thanks all for supporting me on the journey, hopefully hear some good news on your treatments as you progress and for those ahead of me please keep updating  

Hello Fred,

Headaches! Yikes not had those, hope they pass quickly.

Hi jenko1979 will  it be ok when  I start  my treatment  if I can ask  you  any questions  as I'm having  the same  treatment  as yourself 24th  mine  starts  I'm very apprehensive at the moment  

Hi Clecker,

please do - and it’s usual to be apprehensive for the first cycle. I was very nervous regarding things like reactions etc, but it all went smoothly and the nurses will be there for you should anything happen (which it won’t I’m sure).

any side effects you get and are not sure if it’s normal then let us know and I can certainly share my experiences 

regards