Suffering with my diagnosis - tumour behind eye, affecting mental health

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Hi well I don’t really know where to start. Last April 2024 I went for a eye test which they found a large tumour behind my left eye.

I was sent straight to Sheffield Hosptial and in 13th June I was told it was cancer.. it’s shattered my world being told I had that with also having 2 children at home and not knowing what’s was going to happen.

On the 7th August 2024 I had stereotactic radiosurgery gammer ray. I’ve never been left totally blind in that eye and tiredness is so bad I can sleep 17hrs. Some days it’s really effecting my mental health as I don’t even want to get out of bed some days.

I went back January 2025 and was told it had shrunk by 1mm and that I had know what they call toxic tumour syndrome with fluid build up all underneath  the pain some days is so bad.

How should I be feeling after all this is me being angry and mad at the world that I’ve been given this.

  • Can I first offer my sincere sympathy for your tumour diagnosis. To have children in the mix suggests you are comparatively young too which makes everything that more difficult.

    This going to read a little glib but as in anything every individual experience has variation and so I suggest there is actually no "right way" to feel about this. If anything it is probably a bit of an emotional "soup" of feelings fighting to have their say in your thoughts.

    The trick is I think to accept that those thoughts have a right to a say but not to dominate you. Easy in the typing/reading but it takes some doing. That I suggest needs some help to you from the both medical professionals and those closest to you. It is their fight in some ways too, even though you're the focus.

    Express everything you have said here to your medical team and request some form of counselling support would be my suggestion. It isn't so much for the talking as getting ideas for the "tools" to help.

    In the interim I can only wish for you and yours the best of outcomes in these circumstances.