Eye melanoma

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I am currently waiting for moorefields app for a video consult next week. I had my proton beam treatment in Nov 2022..All seams to be going well I think. But just lately I have had Flu and Larengitus with an awful cough. Because I keep coughing my eye has started flashing again do you think this is because of the pressure of sinuses or just the Proton beam zapping the little so and so?

  • Hi  

    I can't help with your question but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.

    Do you have a CNS (Cancer Nurse Specialist), sometimes referred to as a keyworker, that you could speak to about the flashes that you're getting in your eye?

    While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hello Lesley

    I can't comment on what you have said, but  I feel it is very early days for you and recovery takes a really long time (at least in my case)! I had a large choroidal melanoma close to my optic nerve and I had proton beam in October 2021. I am still having daily flickering,flashing and ongoing headaches! I was told the flickering and flashing was normal by the consultant the other day.