Diagnosed today

  • 2 replies
  • 12 subscribers
  • 1232 views

Hi everyone

My husband (aged 37) was today diagnosed with a large choroidal melanoma and advised that, due to tumour elevation, neither plaque radiotherapy or proton beam would be suitable. So he has an operatiFlushedon date in December to return to Moorfields for enucleation. What a day. We are obviously very concerned about mets as it would appear he has had this for some time and anxiously await referral to Oncology. At least they will be able to perform genetic profiling on the Eye once it has been removed, and I understand that will give us further prognostic information. 

So I am here, just reaching out to others who might share any wisdom with us. Thanks! 

  • Hi  and a warm welcome to the online community

    I'm sorry to read that your husband has just been diagnosed with choroidal melanoma and, although my melanoma was the skin version, I know what a difficult time these early days will be for you both.

    I can't help with any wisdom but I noticed that your post hadn't had any replies yet. I've had a look in the group and can see that posted this about their 'journey' with choroidal melanoma which you might like to take a look at. I've also 'tagged' them into my reply to you and hope that they might be able to pop in and help you further.

    It would be great if you could pop something about your husband's diagnosis and treatment so far into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hello wifey84, I'm so sorry to hear about your husband's diagnosis. It's a very worrying time for you both, there are a lot of unknowns for the future but the main thing is that he is now on the path to getting better. It's amazing how well he will adapt to losing his eye, this has happened to me only recently. Take a look at my profile, I've just updated my story to save having to repeat myself and if you have any questions I'll be happy to answer them if I can. There are also some other places you may find helpful, a website lost eye.com and a really supportive Facebook page if you do social media, I hope I'm allowed to name it here but it's for all people with ocular melanoma called ocumeluk.org.

    I wish you both well and am sending hugs and hope for a good result. XXXX