Hi everyone
My husband (aged 37) was today diagnosed with a large choroidal melanoma and advised that, due to tumour elevation, neither plaque radiotherapy or proton beam would be suitable. So he has an operati
on date in December to return to Moorfields for enucleation. What a day. We are obviously very concerned about mets as it would appear he has had this for some time and anxiously await referral to Oncology. At least they will be able to perform genetic profiling on the Eye once it has been removed, and I understand that will give us further prognostic information.
So I am here, just reaching out to others who might share any wisdom with us. Thanks!
Hi wifey84 and a warm welcome to the online community
I'm sorry to read that your husband has just been diagnosed with choroidal melanoma and, although my melanoma was the skin version, I know what a difficult time these early days will be for you both.
I can't help with any wisdom but I noticed that your post hadn't had any replies yet. I've had a look in the group and can see that Barneymum posted this about their 'journey' with choroidal melanoma which you might like to take a look at. I've also 'tagged' them into my reply to you and hope that they might be able to pop in and help you further.
It would be great if you could pop something about your husband's diagnosis and treatment so far into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
