Chorodial melanoma diagnosis this week

FormerMember
FormerMember
  • 29 replies
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Hi,

      My name is Jo & on Tuesday 4th Jan 2020 I went for appointment at Moorfields in London & after all the tests was told it was cancer Worried I will be having my left eye removed within the next month.

Be nice to speak to others who have gone through this and had an eye removed.

What should I expect? Is it easy to adjust to only 1 eye? 

  • FormerMember
    FormerMember in reply to FormerMember

    hi ,iv just popped in to see how you are getting on i hope everything is ok and all went well , x daisie

  • When you get a proper prosthesis it will look better.

  • FormerMember
    FormerMember in reply to Londoner12

    hi ,,will it i do hope so i hate the look of it all so my bottom lid is slightly drooping think this eye may be a bit too big  ,i go on wednesday 4th march for my impression for my perminent eye could you tell me how long ill have to wait for it to be done thanks for your reply

  • I have used the Artificial Eye Service and Moorfields, both NHS, and found it seems to take weeks between the moulding and actually getting the eye. I think I waited about six weeks. I find the whole waiting thing far too long.

  • FormerMember
    FormerMember in reply to Londoner12

    had the moulding done today i was told 6 to 10 weeks it is a long time to wait  thanks for getting back 

  • FormerMember
    FormerMember in reply to FormerMember

    Well here I am 8 days post op.....all went really well and recovering well.

    Advice if turning head and not eyes has been great advice when wanting to look at something. Last day today of antibiotics but still 3 weeks of eye drops to go.....pretty good with doing them, aim ,Roflre n hit target on 1st go Thumbsup

    back at moorfields on 28th for check up, but am now looking forward to prosthetic eye so I look more normal. 

    Everyone at moorfields was fantastic and had excellent care.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Daisie,

                      What's it like going through that process......few weeks away from this stage but be good to know what to expect when I get date for appointment.

    Jo

  • FormerMember
    FormerMember in reply to FormerMember

    hi jo ,im so glad all went well and you are feeling good ,my prosses for the tempory eye was ok ,you go into a  room to ever will be putting the eye in for you theres loads of eyes already made up she got one the nearest to match mine but its a shade darker pupil than mine but its ok ,iv had it in since the 18th december she wouldnt let me leave the room till she saw me put it in myself  which was a good thing i suppose ,i went to have a moulding on wednesday for my perminent eye i was in her room 2 and half hours ,she had to get everything perfect its the same stuff they put in your eye what they have at the dentist when doing impressions there was quite a lot invoved to get it right ,she finaly got everything done with the cast now she sends it all off to be made up to look exactly lke my eye .the waiting now is 6-10 weeks she said quite some time to wait then next prosses is to go back and have it fitted fingers crossed hope it looks good i said its a shame we cant see through it .keep me updatd on your progress x daisie

  • FormerMember
    FormerMember in reply to FormerMember

    RoflJoy yesterday I closed my good and confirmed "nope cant see a thing" Joy had a mad moment but did make me laugh.

    It is a pity we dont have bionic eyes......maybe one day it will be possible.

    Thank you so much for the explanation of what is involved, I now know what to expect when I go Grinning

    I am looking forward to getting my new eye but must admit not looking forward to the cleaning of the lens Grimacing hopefully I will get used to it as I know it has to be done.

    Us 1 eyed warriors shall keep marching on WinkWink

  • FormerMember
    FormerMember in reply to FormerMember

    hi, you are welcome ,i did the same closed my good eye then reality hit me i fell so low got realy upset, have good days and bad days still ,my eye dropped out 2 times while washing my eye lids i frieked out but was brave enough to put it back in .i also think about bionic eyes wouldnt it be great ,may be in the distant future i have got that sunken look now all has settled down but hoping when i get my perminent one it will look better you do get used to doing it yourself yes we will keep marching onwards and up wards x