Hi has anyone had been diagnosed with lymphoma in eyelid?
can’t seem to find much.. think it’s quite rare
Hi Harkybella and a very warm welcome to the online community
I'm sorry to read that you've been diagnosed with lymphoma in your eyelid. I've had a search of previous posts in this group and although there are half a dozen which mention lymphoma they are all in the eye itself. However, this doesn't necessarily mean that no one here has had a lymphoma in their eyelid, it might just be that they haven't posted about it and will reply to you when they see your post.
I'm 'tagging' my fellow Community Champion Mike Thehighlander into my reply as he looks after the various lymphoma groups here and might be able to suggest one for you to join to find others with lymphoma in their eyelid.
While you're waiting for replies it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Harkybella, I see my friend latchbrook tagged me into your post. I am Mike and I help out around our Lymphoma groups.
Could I suggest you join and put up a post in our Non-Hodgkin lymphoma group as we have had a number of folks with Lymphoma presenting in the eye area….. and it’s important to understand that this is rather different from eye cancer.
I have a rare skin NHL diagnosed way back in 1999 and one of my tumours actually spread to my eyelid.
I will look out for your post in the NHL group.
