A Waiting Game .........

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17th June 2025

I may be a bit premature in joining this group as I haven't had a definite cancer diagnosis as yet. I'm awaiting referral for further tests and investigations at my local hospital. I went to my local  optician's last week as I'd felt there was something in my left eye and it felt gritty, and itchy. After various field and eye tests, I was told I had a "choroid mass" in my left eye and I was being referred urgently to my local ophthalmology department.

I have subsequently discovered that it's highly likely it's cancer, a choroid melanoma, and depending on the size, and whether it has spread, the prognosis may not be all that good. My whole life now seems "on hold" until I know definitely one way or another, as I can't really plan much in advance until I know what I'm likely to face regarding treatment options, life expectancy etc. I'm reluctant to tell anyone at the moment ( I live alone) until I feel I can tell them the whole story, presumably after I see the local ophthalmology consultant and get a confirmed diagnosis. I feel quite well in myself and trying to get on with my life as before, only it's not that easy is it? I'm also aware that as difficult and frustrating as this wait is to be seen, if my fears are confirmed, this may well prove to be the "easier"  part of the whole cancer journey, I suppose because you always cling to the slender hope that the diagnosis is not going to be as bad as you fear. 

Update 19th June

Have heard today that I have an appointment with the ophthalmology clinic at my local hospital next Tuesday, 24th, so things are moving quite quickly which I'm pleased about as the sooner tests etc are done, the sooner I'll know exactly what treatment options are available. Just go to get through the next few days and land simply enjoy each day as it comes, taking pleasure in still feeling well and being able to do things

  • Hi Christine

    I am sorry to hear that a mass was seen during your opticians appointment and can understand how scary it may feel. 

    It sounds like things are moving quickly for you and that hopefully your appointment on Tuesday will bring some answers about what may be going on. I remember when I was undergoing testing for my own cancer (endometrial) it all felt a bit of a whirlwind at times but as with you I felt the sooner the better. Once I knew what I was dealing with and what needed to happen , things felt a bit better and more in control. 

    I think taking each day as it comes until Tuesday is a good plan but if at any point you feel like talking to someone would help, then please do give the Support Line a call. There is someone there from 8am-8pm daily.

    I wish you well for Tuesday and please do let us know how you get on.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you Jane for your kind message, it's appreciated. And for sharing your own cancer story which I hope has been a positive one.  As I said in my post above, I do want to know the diagnosis/prognosis so I can plan for my future, whatever that may be. As I feel as well as I have always felt, and am continuing to carry on with my life as normal, it all seems a rather surreal at times. And yes, of course, I will let you know the outcome of my appointment on Tuesday.

  • Wishing you the best for Tuesday

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thanks Jane, appreciated. About to consider all the questions I want to ask and Macmillan site really useful for that!