Eye site loss???

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I had Proton Beam radiotherapy in November  23. The physician said that site loss can occur post treatment after 12 months has past. Has anybody been though the treatment at least a year ago and what effect did have on you?

It is important to me s my other eye is termed a lazy eye and the vision is not that great from this eye.

Thanks

  • FormerMember
    FormerMember

    Hi  

    I'm sorry to read of your diagnosis and subsequent treatment. I noticed that your post had not yet had replies. I hope you don't mind me replying to you as I have had a different type of cancer. By responding this will place your post back at the top where it may be seen by more members of the eye group. You could try a search on the site by using the eye glass at the top of the page. Best wishes for your next scans.

    A x

  • Hi. A very good question and one I am entertaining myself as I await my own treatment. No issue with any of the literature I have around the potential impact to date albeit I am trying to err on the side of my sight will be degraded one side rather than lost, without ignoring the potential. As you ask yourself, it would be helpful to have the input of some real experiences rather than statistics. 12 months on from your treatment perhaps you're in a place to share where you're at with regard degradation?

  • I hope you had a positive outcome with regards to your vision. I’m new here and just wondering how people have got on. 

  • Well here I am in April maybe 6 months on from PBT.

    Sight for me currently is holding up. Nothing noticeable in the impacted eye as yet.

    In a "Be prepared for the bad but hope for the best" place at present.

    Probably too early to expect noticeable change in my case.