Good morning melanoma owners!
I had a letter a while ago from the regional hospital with a date for an inspection, the wording on the letter made it clear that they didn't know I had already had 'the Proton procedure' so I phoned up and explained this to them. Yet another letter arrived this time saying I had 'MISSED' my appointment and making a new one. Not cancelled but missed.
I thought maybe it's to do with my other longstanding eye problem, that of continuous and copious watering. So we went along and I endured the eye test, vinegar in BOTH eyes and a scan before I got to see the consultant.
From the outset it was obvious that he believed nothing had been carried out on my melanoma, I tried to steer the appointment round to the watering problem but no joy apart from yet more drops. The only medical appiointments I am going to respond to will be from Liverpool or Clatterbridge.
Cheers, a miffed Tony.
Hi Tony
Do you have a clinical nurse specialist (CNS) assigned to you? The reason I ask is because when something similar happened to me I spoke to my CNS and she sorted it out.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Tony
CNS stands for clinical/cancer nurse specialist.
Sorry, having reread my reply to you I realise I didn't make myself entirely clear. I wasn't commenting on your treatment but on your admin problems.
A little while ago I had my normal 3 monthly check-up done privately because I would be away when the NHS one was due. I phoned the NHS appointments department to tell them I didn't need the one they'd given me and they said they'd cancel it. However, a week before it was due I got a reminder letter from the hospital. So this time I phoned my CNS and got her to cancel the appointment for me.
All the best
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
