Hi All. I lost my eye to ocular melanoma last June, form diagnosis to it coming out was a month, thanks to Sheffield. Now coming to terms with life has changed but keeping positive is helping. Now I want to tell the world and make people aware of this...
17th June 2025 I may be a bit premature in joining this group as I haven't had a definite cancer diagnosis as yet. I'm awaiting referral for further tests and investigations at my local hospital. I went to my local optician's last week as I'd felt there...
I had Proton Beam radiotherapy in November 23. The physician said that site loss can occur post treatment after 12 months has past. Has anybody been though the treatment at least a year ago and what effect did have on you? It is important to me s...
Have encountered a new word in the last few weeks (a celeb interview) of "Scanxiety"...the sense of apprehension you get on the run up to an appointment, primarily for MRIs but I think it holds for any appointment really. I have found it weirdly gives...
Hi I’ve been diagnosed with eye melanoma stage one ! I’ve been positive all week as I had a good idea it wasn’t going to be “good” news! I think I was kinda prepared and felt relieved that it’s stage one early detection ! Now im having panick attacks...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi I have been newly diagnosed with ocular melanoma. Mine is going around my eye so would be difficult to treat other than taking my eye out which I am having done at the end of Sept! I am so scared at what the future holds as I am 37 years old with...
Hi I had Proton Beam radiotherapy 11 years ago for eye cancer and it has decided to grow again in my eye. I currently have vision still in that eye but no peripheral vision. I have been offered total removal of my eye and go down a prosthetic eye or sterotactic...
I had my treatment last February in Liverpool then had two checkups also in Liverpool. I was then discharged to my local hospital. I was there today. The very nice doctor looked through a machine into my eyes then looked at a photo Liverpool had sent...
Haven't been on here in quite a long time, but felt that I just wanted to write something! Went to Liverpool hospital yesterday, and was told that I would need more mitomycin drops... anyone else had those? This will be my 6th course, over the last 12...
