Hi Everyone,
It’s hard to believe that just a few weeks ago, I was fully immersed in my MSc Management program, focused on my studies and dreaming about the future. Everything seemed to be going according to plan. But life has a way of surprising us, and I never expected that abdominal pain would lead to a diagnosis that would change everything Chronic Myeloid Leukemia (CML).
Joining this forum is a big step for me, as I believe in the power of community support and shared experiences. I'm looking forward to connecting with others who understand the unique challenges of balancing life, studies, and health. Whether it’s discussing ways to manage side effects, sharing tips for staying motivated, or simply offering a listening ear, I’m here to learn.
Thank you for welcoming me into this space.
Hi Temi and welcome to this corner of the Community although I am sorry to see you joining us and to hear about your CML diagnoses.
I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
I see in your profile that you finish it with “….it is possible to continue striving for your dreams”
I totally agree with you. When I was first diagnosed our daughters were 14 and 18…… I continued to work for 12 years in a demanding teaching job and yes had various treatments over these first 16 years then in late 2013 my story got rather complicated (See my story) as I had to go onto have significant treatments. But we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turn 69 in Nov and am now 3 months away since my last treatment 9 years back and we continue to look forward to what else life has in store first us to enjoy
CML is on the rare side, but let’s look for any group members to pick up on your post and get back to you. You can also click on the main ‘CML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a person with CML in it so worth checking.
Always around to help more or just to chat
