morning everyone,
So I have been newly diagnosed, I have PAT scan tomorrow, its been mind blowing to say the least, as its all happening so quickly.
I had another biopsy taken on Monday this week under sedation, and was so relieved to wake up from that operation ,as iv not been able to tell my son yet as he's working away in Las Vegas
and really didn't want to worry him out there, he will be back next week, his estrange father died last year, and I am the only family my son has left, so im extremely worried about telling him. although he is a grown man, his still my boy. does anyone one have any advise about the best way to tell your loved ones?
many thanks
Jane x
It's so much to take in all this, at least you now know your staging. I have my planning CT tomorrow and I got my start dates for chemo and radiotherapy which will be the 2nd January, feel so very nervous about it now I have the dates. They recommended e45 cream for me too. Have you got your dates yet? Xx
Hi Tee
yeh it is mate, my heads all over the place. still lets just enjoy Christmas and deal with it afterwards.
how did your planning go?
I have to go in this Wednesday coming, to have 3 scans, then they will tell me my dates, from what i gather on a phone conversation im due to start on the 27th, but im not 100% sure. been getting stressed about organising lifts there and back, having to rely on my friends really hate putting people out, they have all been brilliant offering me help, im just not that good at taking it, lol always been so independent. I don't know why I couldn't go to my local hospital,
anyway try not to stress it to much, have you had time to try any meditation yet?
xx
Hi Jane
Oh wow the 27th is my 40th birthday so you should be starting then! Planning was ok just a long day as I had to have chemo bloods done then 2 scans, apparently I don't drink enough so I have to drink much more than I am so I got myself one of them water bottles with the times on it I'm going to make sure I drink plenty. The scans aren't too bad, I now have three little dot tattoos one on each thigh the other on top of my pelvis they didn't really hurt so much as scratch lol but quiet sharp, I have a fair few tattoos anyway so wasn't that bad at all. Have you looked into hospital transport? I asked my chemo nurse about it and she gave me a leaflet for it makes it a bit easier for when needed, the price isn't too bad either considering. I have given it a try, I found it a tad weird at first especially with the kids around, but now I'm doing it in my room before bed, I have found it helpful and helps me off to sleep, also I'm eating less junk too. Thanks for the link for it it's actually very very useful.
Definitely enjoy the festive period before this all begins. Everyone keeps saying it's not as bad as what's in our heads, but we have no idea what it expect, just have to hope we sail through this. Xx
Hi Tee
well happy birthday for the 27th. what will you be doing to celebrate?
Glad your planning went ok, why are the dots put on your thighs? I was told they would go on my hips. im sure I will need to have more water in my system too, I have looked at the travel via the hospital, it looks like a pain in the ass, as my son wouldn't be able to come with me, and you have to pick and drop others off and there is alot of waiting about for them to pick u up. so not really for me.
pleased you tried the meditation, it is weird at first, I do it with headphones on im the morning and also at night, when i go to bed, its helped with my anxiety no end. its something you should defo do with out the kids, as you need to be able to relax.
I put the friends request on as I wanted to be able to chat in private, but i guess we both have to be on at the same time to do that, im not very p.c minded. lol, well chat soon take care xx
I have just sent you a private message now I've worked out how lol. Technology is a wonderful confusing thing.
I'm not sure yet what I'll be doing, just playing it all by ear at the moment. Yeah the dots are more hips but on the thigh part, they are only tiny though. Didn't hurt at all really to be honest. I am feeling quiet nervous at time goes by can't wait for it to all be completed, I'm sure you feel the same way too. I can't have anyone to sit with me during chemo either, they said they don't have the space but the nurses all seem lovely so and quite a few chairs in the room so I'm sure chatting to others will occur. Have you had anymore news or progress yet? All has been quiet now here, it's just the waiting to start and wishing it was over now lol xx
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