Hello,
so I've received a diagnosis of pre-cancerous high grade cells a couple of weeks ago after a pap smear and a colposcopy.
The tests were done at a doctor I wasn't fully comfortable with, so I took my test results and consulted another doctor and was preparing to do the LEEP procedure with him. Today, he wanted to get a closer look at my cervix and long story short, he suspects an over-reading of the tests as the cervix does not look angry to him, and he would do describe it as CIN2 at worst. We didn't do another biopsy but he basically told me that we could either test more and wait or proceed with the operation and he would make sure the excision is as minimal as possible.
I'm really confused at this stage and not sure what to do. My initial pap smear came back with low SIL, and I was not expecting a CIN3 diagnosis but I got it after the colposcopy. And now that I was mentally ready for the LEEP removal, I get new information that it might not be so high risk..
I'm 38 with no kids and would like to keep my ability to have children intact so that is why I would rather not do the operation. But I'm afraid I might be ignoring a problem and making things worse.
I'm just looking for advice. Has anyone had a similar experience?
Hi Lammie97e296 and welcome to our group,
it must be difficult for you to be in this position where there is confusion about the cells and the need for treatment or not. It’s a very personal decision to go ahead with a treatment if it’s not certain it’s needed, but I’d say an important point is feeling comfortable with the doctor and you’ve said you didn’t feel that with the first doctor.
You haven’t had a biopsy done by this second doctor, and so you might want to consider having that done to settle your mind a little? Currently he is basing his judgement on a visual check, but it’s possible he might not be correct with assuming it’s CIN2 without a biopsy. Did you have a biopsy with the first doctor which produced the CIN3 result?
If you do have to have a LEEP, it’s a minor surgical procedure to remove the cells and should not impact on your fertility and ability to have children later.
I don’t have a similar experience to share as I went straight to a cancer diagnosis and I appreciate that you are looking for others who have been through the same kind of results discrepancy as you have. However, I wanted to ensure you had a reply, as I notice you haven’t had one as yet from others.
Sarah xx
