Are there any ladies or groups for stage 4b cervical cancer I could connect to/with?

I don’t have 4b but I’m going through this in covid too and it’s awful. I have 2 surgeries scheduled and my husband won’t be able to attend the hospital with me. It’s so hard not being able to see friends and family too. Sending you all the best! 

My cervical cancer was in 2012. I had stage 1b1 grade 3. I had a radical hysterectomy and my eggs stored since I was only 27 at the time and didn’t have children (and still don’t). 
you’re very welcome to chat to me. I may not have the answers but I’m a good listener. Xx

Jo's Cervical Cancer Trust has a section on their forum for those living with advanced cervical cancer: https://www.jostrust.org.uk/forum

Hope everyworks out as well as possible for you

x

Hi, LeoLeo

I was diagnosed with 4b in May 2019. Happy to message separately if you'd like. For info about my "journey" so far, my profile pretty much covers it but don't feel you have to read it - we all have quite different experiences.

You may be aware of Jo's Trust - specialised in Cervical Cancer. Though I prefer mixed cancer forums as having the same cancer really doesn't mean you feel the same. Living with cancer is much more of a homogenous club.

Take care and best wishes

I'm so sorry I am only replying now.  The email alert went to my junk file.  Thank you for replying.  I wish you the very best with the surgeries and hope you can get back home to your husband shortly afterwards x x

Thank you so much and sorry for my slow reply..27 is very young to have to go through what you have.  Great that you have eggs stored, though, good to keep your options open.  Very best of luck to you x x 

Hi  I am newly diagnosed as well and in a similar situation.  I totally understand the loneliness - I feel like I have been taken out of the world that everyone else is living in and am on a shelf looking down.  I have been very cautious though of groups as I am scared of any negative information that is too difficult to deal with. I find the medical profession very negative about cancer and I think there are many many people who recover from later stage cancers of all types and that's what needs to be focused on.  

Thank you Beth, I have just joined the forum you mentioned.  xx

Hi Carla, we think alike!  I find my oncologist very supportive, but find some of the online information too much and too difficult to deal with at times.  Especially peoples opinions about diet...so may schools of thought on that one and a bit of a rabbit hole to dive down.  I have taken comfort from many stories of people thriving rather than surviving with cancer and I love to focus on all that I can do for myself to support my joy in life at this stage.  Much love to you.  Great to connect x

Hi Sorry for the delayed response.  I had my second lot of chemo last Friday and it's hitting hard.  I was only diagnosed about 6 weeks ago I guess so it's all new.  I am doing a special diet but it's really tough and I totally get that many people would not choose to do it.  I feel it is just something I can control in this out of control situation but it's very restrictive and I think every person's journey is personal to them.  I certainly wouldn't judge what another person was doing differently.  It is lovely to connect and always happy to chat.  I read a lot of radical remission stories.  My life coach actually had terminal cancer with no treatment option and was sent home with 12 months to live about 9 years ago.  She just spontaneously went into remission so what do the doctors know!  She feels blessed but said she never imagined it would happen to her.  Those are the things you really need to hear.  x