Hi,
Ill try and keep it brief... I have hpv, was picked up on a smear as i was pregnant with my oldest 4 years ago, after having my 2nd 2 years ago i had a colposcopy due to low grade changes and a punch biopsy was done. A year later had another smear and high grade dyskaryosis was found. Had another colposcopy two weeks ago and lletz. The nurse said she was happy she had removed it all and couldnt see anything sinister.
Today i got a notification through patient knows best on my nhs app that ive got an appointment, 15 mins with a nurse next Thursday. Thats all it says. I called the gynaecology team at the hospital to ask what it was about and they said it would be too soon for my results to have come back and that if it was anything untoward the appt wouldnt be in the GAU and it would be with a consultant, not a nurse.
Has anyone else had this, and knows what it might be? Im freaking out with worry because the appt is less than a week away, which normally isnt a good sign, and theres no info to be found as to why ive been asked to attend! Its now the weekend so i cant get hold of anyone else to try and work it out, just hoping someone here may have an idea?
Hi Baconbadger and welcome to the group.
It may be something as simple as appointments being made automatically after someone has a LLETZ treatment but it’s hard to know for certain. Normally you would expect an appointment to discuss the results of the LLETZ to ensure after analysis of the tissue at the lab that everything has been removed successfully with a clear margin. If not, there might need to be a discussion about additional treatment.
You may get replies here from others who have been in a similar situation, but ultimately everyone’s situation is unique to them and timings of appointments vary between different clinics.
I understand it’s worrying to get an appointment with no explanation, but it’s not too long to wait until you’re seen and get some answers. It’s unusual for any clinic to give out much information over the phone, so you may not be able to find out more before the appointment. I hope you’ll let us know how you get on, and that you get some reassurance when you attend.
Sarah xx
Oh my-that is long way to go. It’s really difficult when you’re not told anything and then don’t have anyone to call to ask. I must admit, I’ve always known what all my appointments were for in advance and I’ve had to deal with several different hospitals in different counties.
Have you got a friend or another relative who could come with you? Do you have transport? I have gone to one results appointment on my own but always went with my partner to everything else as it’s good to have that support and for there to be an extra pair of ears so you hopefully don’t miss anything you’re told if it’s not good news.
Sarah xx
