Diagnosed (well almost) with likely De Novo triple positive stage 4

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I noticed a change in my nipple back in October, went to GP, was sent home (without breast exam) told everything was fine.

Went back in January, with a large lump, had biopsy and told I have stage 3, grade 3 triple positive. 4 lymph node involvement. Paid for a PET as the backlog was over 4 weeks, they found the tiniest of spots on my liver. Had MRI, radiologist has said they think it’s suspicious, but has been escalated to a specialist to investigate. Expecting they will confirm it’s cancer.

Due to start 4 cycles of phesgo and doxetacel chemo, then 4 cycles of AC chemo, then full mastectomy, then more chemo

Due to the possibility of tiny spot on liver they are now talking about indefinite phesgo injections, I’m wondering if anyone can tell me how they are getting on with these? How long have they been on them. Is anyone having this combined with palbociclib or similar? I’m trying to find positive stories about this, I’m 41 with two very young children. 

  • Hi  

    I haven't had the treatment you mention but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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