Just diagnosed with Her2 positive breast cancer in my lungs. Declining treatment and wanting to connect with people in a similar position

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Hi peeps

As discussed above, I have been diagnosed with secondary cancer and just wondered if there is anyone on here that is in a similar position please? I am due to see the oncologist on the 10/7. I really do not want any further chemo as it caused heart failure and I don’t want the immunotherapy. To be honest I will be declining any treatment now and will be opting for a more natural path.

My questions are;

1. I have considerable pain in my breast as they have found cancer in there and my lymph nodes. I have had 2 previous lumpectomy’s and 10 lymph nodes removed. They couldn’t get the clear margins and advised a third operation was needed but I declined. I am ready to have a mastectomy now due to the pain I am in but my consultant said she wants me to have a conversation with the oncologist first before she will perform the mastectomy. Has anyone else had a mastectomy when secondary cancer has been found? 
Also has anyone had reconstructive surgery following a mastectomy in my same position? 

2. Consultant said I will only have months to live if I decline any treatment. Has anyone else had a similar experience? I’m struggling to believe it will be months!! 

3. Has anyone retired on ill health with a similar prognosis? I work for Bradford LA and wondered if I would be eligible for this?? Also do you think I would be eligible for Tier 1. Is anyone already in receipt of this?

lots of questions. So happy to be able to ask this of people who are in a similar position. Thank you in advance x

  • I’m new here and I don’t have same diagnosis but I just want you to know I’m here, I’ve heard you and you’re not alone. I’m sure someone here will reach out. Huge hugs and listening skills is all I can offer right now.