Hello, I am new here, and I have secondary breast cancer, gone to the bones.

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Hi

Not sure what to say. I have had my first experience with breast cancer when I was 35. Completely out of the blue, no cancer in the family. I had 3 surgeries resulting in a mastectomy, lymph nodes clear which was a relief.

I worked with the local support group in Northampton and was quite active for a few years (probably 12 I think, maybe more). 22 years later, during the Covid epidemic, I found 2 lumps in my arm pit and this time, things happened very quickly! The first time, the doctors kept sending me away for 2 years but this time, got referred, operated, aggressive chemo and radiotherapy, and I was a bit shy, although I did ring the bell at my last radiotherapy session.

A year later, I have a bump on my head, thinking I got bitten by a mosquito etc. I have allergic reactions to bites. It was not going down and called the cancer breast nurse, feeling a bit stupid as it was on my skull and not the breasts. After several different scans, I found out I have bone cancer. It is spread in lots of different bones and I started a treatment 2 days ago.

I would love to hear from any of you how you cope with the treatment and what else you do to cope. My bump feels like it is growing and is painful, glad I have some hair to hide it!

Looking forward to hearing from you

LS

  • Dear LS I also had spread to the bones many years after primary breast cancer. I am three months into treatment and tolerating it very well (apart from currently have covid). Usually I am still exercising and carrying on pretty much as before. I take great comfort from the many posts from people who have lived a long time with SBC. A lot of the treatments can be well tolerated and new treatments coming along too. Only advice I would give is be kind to yourself, rest whenever you need it and don’t hesitate to ask for help or discuss any concerns with your breast care nurse. Mine is great so helpful and knowledgeable. I wish you all the best as you continue your treatment. Lyn

  • Hello Lyn,

    Thank you so much for replying to me, much appreciated. I hope you will not suffer too much from Covid, what a pain, and it is on the increase again, glad they are offering the autumn booster. My arm still felt a bit sore last week after the booster, but glad I had it done. I will need to take some time to read the messages you mention, it is great to see the many advances made in cancer research, and I have been contributing to these since my first encounter. It makes me smile when you write: be kind to yourself, so true, and I let others know about it too, although find it difficult to do it to myself. Will have to learn it! Thank you for your kind words and I wish you the very best too! 

    Thank you and all the best Lyn

    LS