Hello

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Hiya I’m Issy and have joined this group as I am awaiting a bone scan result and think I may have bone mets. I was diagnosed stage 2b BC in Jan 18 and have been getting new pain in lower back at sacrum , hoping I’m wrong but knew this was always going to be a possibility , I wanted to ask does anyone with bone mets still work? 

  • Hi there Issy nice to meet you. I was diagnosed a year ago with secondaries in the hip and spine. I have been on palbociclib and letrozole since then and all my scans to date have been stable. Thankfully I don't have pain from the mets, mostly joint pain from the medications which I control with over the counter painkillers. I work full-time Mon to Fri, office based. I have an understanding employer who has no problem giving me time out for appointments. Hope this helps

    Jools xx

  • Thanks a lot yeah my plan either way us to keep working , nothing else for it really x

  • Hi Issy, my daughter was diagnosed with bone mets last year, she has just had her 3rd scan and all stable thankfully. To help you ,she is working very hard, running a home and has a 3 year old! She is amazing but I know this keeps her positive and able to feel "normal". I really wish you all the best.

  • Thanks  a lot your daughter sounds amazing x