Hi I was first diagnosed in February 2016. So relieved to be reaching 5 years when received the devastating news found on bone scan. I feel frightened lost waiting for treatment plan. Feel like I’m losing my mind . The waiting is the worst part.
I agree that waiting is the worst part for sure...I was first diagnosed jan 2018 got treatment and went back to ‘normal life’ then last july 2020 I was re-diagnosed ...I was so shocked and never saw it coming I went about in a daze and was so angry and emotional...I went to a really dark place at times convinced myself I was going to die tomorrow ...I had to get control of my thoughts I told myself to expect the worst and anything else was a bonus theres no right or wrong way to deal with it ...sometimes talking about it ...sometimes not talking about it ...keeping busy doing something helped too..I am new to posting so probably not much help but theres lots of hints and tips on here that might help you..I just want you to know your not alone and hopefully youll get your treatment plan soon and get some positivity back in your life.xx
Thankyou so much for replying it's nice to not feel alone.. It was a huge shock to me too I thought I was moving forward then found myself in a worse position The dark thoughts are difficult to control I'm fine 1 minute then crying the next. Trying to keep as strong as I can thanks again xxx
I was always a terrible over-thinker and I am trying hard not to be...the brain is a powerful thing ...for the first few months as soon as I woke up I would go into a terrible pit of despair ....like grief or a switch being flicked ...as soon as I woke before I even opened my eyes so I would count to ten and back over and over again while I got up and started my day just to stop myself from thinking...turn on the tv or some music...walking..anything that distracted me and eventually although I still have to do it some mornings I feel I am in better place and can forget my situation alot of the time and just appreciate I am still here....I am not strong but try hard to keep my brain in check...dont be hard on yourself ...cry...scream do things you enjoy if you can ...anything to get you to your next appointment then hopefully things will move to a better place..xx
Hopefully my treatment will start soon and then at least I will feel we are keeping it at bay so I can live but it is tough I think I'm just trying to come to terms with the news. Thankyou again xx
