Hi all

FormerMember
FormerMember
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Hello hive,

I was first diagnosed with primary breast cancer in 2010 and remained very well after having a bi lat mastectomy and chemo. In 2018 I was diagnosed with lung mets. And since that time had another round of chemo followed by herceptin. On Friday I had my three monthly pet scan only t9 get results yesterday. The nodules in my lung have grown and the suv has risen, a further nodule has been identified and they have identified high metabolic activity in my hilar lymph gland - buggar! Plan is now to start on kadcyla. New one to me. Doc ran through potential side effects yesterday and realise they are just potentials and not a guarantee. Anyone out there had kadcyla - what’s your experiences on it? 

stay well xxx

  • Hi and a very warm welcome to the online community

    I don't have any experience with Kadcyla but it's natural to want to hear about other people's experiences with this drug. 

    While you're waiting for replies if you type 'kadcyla' into the group's search bar you'll find lots of previous posts about this drug. You could have a read through the more recent ones and respond to any of the posters if you think they can help you further.

    When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Wishing you all the best with your upcoming treatment.

    x

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